圆锥角膜患者的视力相关生活质量：一项横断面研究。
Vision-related quality of life among patients with keratoconus: a cross sectional study.
作者信息
Al Zabadi Hamzeh, Shehadeh Mohammad, Amro Lubna, Ghattass Nadeen, Taha Ibrahim
机构信息
Public Health Department, Faculty of Medicine and Health Sciences, An-Najah National University, Nablus, Palestine.
Opthalmology Department, An-Najah National University Hospital, An-Najah National University, Nablus, Palestine.
出版信息
Front Med (Lausanne). 2023 Aug 10;10:1208911. doi: 10.3389/fmed.2023.1208911. eCollection 2023.
PURPOSE
The present study aimed to evaluate the quality of life of keratoconus patients residing in Nablus city, Palestine. Furthermore, we investigated the possible correlation between Pentacam topographic indices and the quality of life of patients with keratoconus.
METHODS
This cross-sectional study evaluated keratoconus patients at An-Najah University Hospital in 2019, diagnosed through clinical examination and corneal tomography. A control group was randomly selected from non-keratoconus patients with normal tomography. The NEI-VFQ-25 questionnaire was administered during face-to-face interviews to compare both groups. NEI-VFQ-25 assesses vision-related quality of life and is a validated tool.
RESULTS
Keratoconus patients' quality of life is significantly impacted, mainly in near and distant vision, general vision, mental health, and social health, but not in general health, ocular pain, color vision, role difficulties, or dependency. Visual acuity is significantly affected in both eyes of keratoconus patients.
CONCLUSION
Patients with keratoconus exhibit a decreased quality of life related to vision, with physical, emotional, and social impairments demonstrated by the NEI-VFQ-25 when compared to controls. Since keratoconus patients are typically young adults in their productive years, understanding their concerns about their future is an important public health aspect that can aid in modifying their treatments. By addressing the specific needs of this patient population, healthcare providers can better support their long-term well-being and quality of life.
目的
本研究旨在评估居住在巴勒斯坦纳布卢斯市的圆锥角膜患者的生活质量。此外，我们还调查了Pentacam地形图指数与圆锥角膜患者生活质量之间的可能相关性。
方法
这项横断面研究于2019年对纳贾赫大学医院的圆锥角膜患者进行了评估，这些患者通过临床检查和角膜断层扫描确诊。对照组从断层扫描正常的非圆锥角膜患者中随机选取。在面对面访谈期间使用NEI-VFQ-25问卷对两组进行比较。NEI-VFQ-25用于评估与视力相关的生活质量，是一种经过验证的工具。
结果
圆锥角膜患者的生活质量受到显著影响，主要体现在近视力和远视力、总体视力、心理健康和社会健康方面，但在一般健康、眼痛、色觉、角色困难或依赖性方面未受影响。圆锥角膜患者的双眼视力均受到显著影响。
结论
与对照组相比，圆锥角膜患者的视力相关生活质量下降，NEI-VFQ-25显示出其在身体、情感和社会方面的损害。由于圆锥角膜患者通常是处于生产年龄的年轻人，了解他们对未来的担忧是一个重要的公共卫生方面，有助于调整他们的治疗方案。通过满足这一患者群体的特定需求，医疗服务提供者可以更好地支持他们的长期幸福和生活质量。
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