Dassel Kara, Utz Rebecca L, Sanchez-Birkhead Ana, Carbajal-Salisbury Sara, Villalta Jeannette, Cajavilca Moroni, Solkowski Lauren, Aruscavage Nancy, Supiano Kathie, Iacob Eli
College of Nursing, University of Utah, Salt Lake City, Utah, USA.
Department of Sociology, College of Social and Behavioral Sciences, University of Utah, Salt Lake City, Utah, USA.
Health Equity. 2023 Aug 25;7(1):430-438. doi: 10.1089/heq.2022.0143. eCollection 2023.
The LEAD (Life-Planning in Early Alzheimer's and Other Dementias) Guide is an advance care planning (ACP) tool for use within the context of dementia. To meet the needs of diverse communities, we sought to create a culturally sensitive and translated Latin American Spanish version of the guide.
First, the guide was translated into Spanish. Second, we conducted forward and backward translations. Third, focus groups with Spanish-speaking Latino adults were held (healthy adults and current or previous dementia caregivers).
Descriptive analysis revealed three domains regarding the Latin American Spanish version of the LEAD Guide (LA LEAD Guide): (1) Family Dynamics (e.g., preventing family conflict), (2) Cultural Expectations (e.g., familial caregiving responsibility), and (3) Health Literacy (e.g., lack of knowledge about ACP).
This process created the Latin American LEAD Guide as a culturally and linguistically appropriate and acceptable ACP tool for older Latino adults.
The availability of culturally sensitive and Spanish ACP resources could facilitate greater health care access and research participation among Latino Americans by diminishing the linguistic and health literacy barriers for those not comfortably proficient in English.
《LEAD（早期阿尔茨海默病及其他痴呆症的生活规划）指南》是一种用于痴呆症背景下的预先护理规划（ACP）工具。为满足不同社区的需求，我们试图创建一个具有文化敏感性且经过翻译的拉丁美洲西班牙语版本的指南。
首先，将指南翻译成西班牙语。其次，我们进行了正向和反向翻译。第三，与讲西班牙语的拉丁裔成年人（健康成年人以及当前或以前的痴呆症护理者）举行了焦点小组讨论。
描述性分析揭示了关于拉丁美洲西班牙语版本的《LEAD指南》（LA LEAD指南）的三个领域：（1）家庭动态（例如，预防家庭冲突），（2）文化期望（例如，家庭护理责任），以及（3）健康素养（例如，对预先护理规划缺乏了解）。
这一过程创建了拉丁美洲《LEAD指南》，作为一种对拉丁裔老年人在文化和语言上合适且可接受的预先护理规划工具。
提供具有文化敏感性的西班牙语预先护理规划资源，可以通过减少那些英语不够熟练的人的语言和健康素养障碍，促进拉丁裔美国人获得更多医疗保健服务并参与研究。
