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为拉丁裔乳腺癌幸存者设立西班牙语重点的预先医疗指示教育课程。

Establishing a Spanish-Focused Advance Care Planning Educational Session for Latina Breast Cancer Survivors.

机构信息

NYU Rory Meyers College of Nursing, 433 1st Ave, New York, NY, 10010, USA.

College of Nursing, University of Utah, 10 South 2000 East, Salt Lake City, UT, 84112, USA.

出版信息

J Cancer Educ. 2024 Apr;39(2):147-152. doi: 10.1007/s13187-023-02387-5. Epub 2023 Nov 23.

Abstract

Minoritized groups including Latinos are less engaged in awareness and discussion of advance care planning (ACP) due to the United States English-dominated healthcare system that contributes to systemic inequities related to language and cultural barriers. Explicit interventions, such as a sole Spanish-speaking educational session, may begin discussions of ACP among Latina breast cancer survivors. However, what constitutes a culturally sensitive Spanish-language ACP educational session is currently unknown. To address this need, this current project (1) presented a nurse-led ACP educational session and (2) held a focus group to assess the acceptability of the Spanish-focused ACP educational session to a Spanish-speaking group of Latina breast cancer survivors. Thematic analysis revealed four themes: (1) familial involvement, (2) need for advance care planning education, (3) addressing language and cultural barriers, and (4) culturally sensitive and informative resources. Features of a culturally sensitive Spanish-focused ACP educational session were identified and found to reduce current barriers that hinder ACP conversations in Latina breast cancer survivors.

摘要

少数群体,包括拉丁裔,由于美国以英语为主导的医疗保健系统,参与预先医疗指示(ACP)的意识和讨论较少,这导致与语言和文化障碍相关的系统不平等。明确的干预措施,如单一的西班牙语教育课程,可能会开始讨论拉丁裔乳腺癌幸存者的 ACP。然而,目前尚不清楚什么构成了具有文化敏感性的西班牙语 ACP 教育课程。为了满足这一需求,本项目(1)提出了一个护士主导的 ACP 教育课程,(2)举行了一个焦点小组,以评估以西班牙语为重点的 ACP 教育课程对西班牙语组的拉丁裔乳腺癌幸存者的可接受性。主题分析揭示了四个主题:(1)家庭参与,(2)需要 ACP 教育,(3)解决语言和文化障碍,以及(4)具有文化敏感性和信息丰富的资源。确定了具有文化敏感性的以西班牙语为重点的 ACP 教育课程的特点,并发现这些特点减少了目前阻碍拉丁裔乳腺癌幸存者进行 ACP 对话的障碍。

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