NYU Rory Meyers College of Nursing, 433 1st Ave, New York, NY, 10010, USA.
College of Nursing, University of Utah, 10 South 2000 East, Salt Lake City, UT, 84112, USA.
J Cancer Educ. 2024 Apr;39(2):147-152. doi: 10.1007/s13187-023-02387-5. Epub 2023 Nov 23.
Minoritized groups including Latinos are less engaged in awareness and discussion of advance care planning (ACP) due to the United States English-dominated healthcare system that contributes to systemic inequities related to language and cultural barriers. Explicit interventions, such as a sole Spanish-speaking educational session, may begin discussions of ACP among Latina breast cancer survivors. However, what constitutes a culturally sensitive Spanish-language ACP educational session is currently unknown. To address this need, this current project (1) presented a nurse-led ACP educational session and (2) held a focus group to assess the acceptability of the Spanish-focused ACP educational session to a Spanish-speaking group of Latina breast cancer survivors. Thematic analysis revealed four themes: (1) familial involvement, (2) need for advance care planning education, (3) addressing language and cultural barriers, and (4) culturally sensitive and informative resources. Features of a culturally sensitive Spanish-focused ACP educational session were identified and found to reduce current barriers that hinder ACP conversations in Latina breast cancer survivors.
少数群体,包括拉丁裔,由于美国以英语为主导的医疗保健系统,参与预先医疗指示(ACP)的意识和讨论较少,这导致与语言和文化障碍相关的系统不平等。明确的干预措施,如单一的西班牙语教育课程,可能会开始讨论拉丁裔乳腺癌幸存者的 ACP。然而,目前尚不清楚什么构成了具有文化敏感性的西班牙语 ACP 教育课程。为了满足这一需求,本项目(1)提出了一个护士主导的 ACP 教育课程,(2)举行了一个焦点小组,以评估以西班牙语为重点的 ACP 教育课程对西班牙语组的拉丁裔乳腺癌幸存者的可接受性。主题分析揭示了四个主题:(1)家庭参与,(2)需要 ACP 教育,(3)解决语言和文化障碍,以及(4)具有文化敏感性和信息丰富的资源。确定了具有文化敏感性的以西班牙语为重点的 ACP 教育课程的特点,并发现这些特点减少了目前阻碍拉丁裔乳腺癌幸存者进行 ACP 对话的障碍。