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以波兰语为主要语言且口语能力良好的语前聋人工耳蜗使用者样本的生活满意度。

Satisfaction with life in a sample of prelingually deaf cochlear implant users with a good command of spoken Polish as the primary language.

作者信息

Kobosko Joanna, Jedrzejczak W Wiktor, Rostkowska Joanna, Porembska D Beata, Fludra Małgorzata, Skarżyński Henryk

机构信息

Institute of Physiology and Pathology of Hearing, ul. M. Mochnackiego 10, 02-042 Warsaw, Poland; World Hearing Center, ul. Mokra 17, Kajetany 05-830 Nadarzyn, Poland; Maria Grzegorzewska University, ul. Szczęśliwicka 40, 02-353 Warsaw, Poland.

Institute of Physiology and Pathology of Hearing, ul. M. Mochnackiego 10, 02-042 Warsaw, Poland; World Hearing Center, ul. Mokra 17, Kajetany 05-830 Nadarzyn, Poland.

出版信息

J Commun Disord. 2023 Sep-Oct;105:106370. doi: 10.1016/j.jcomdis.2023.106370. Epub 2023 Sep 6.

Abstract

INTRODUCTION

This study investigated the level of satisfaction with life (SWL) in a group of cochlear implant (CI) users who had been prelingually deaf but were orally educated. They had received one or two CIs (as a child, adolescent, or adult) and were highly competent Polish speakers. This study looked at three factors that may affect SWL - psychosocial, deafness/hearing and communication related, and sociodemographic.

METHODS

The participants were prelingually deaf CI users who had learned highly competent spoken Polish as their primary language. They had been educated in mainstream or integrated schools (not schools for the deaf), and had no other disability or severe illness. Measurements were done with 5 questionnaires: the Satisfaction With Life Scale (SWLS), the I-Others Questionnaire, the Patient Health Questionnaire (PHQ-9), the Deaf Identity Development Scale (DIDS), and the Nijmegen Cochlear Implant Questionnaire (NCIQ).

RESULTS

The SWL level of the group was similar to that of the standard Polish population. SWL was positively related to positive self-perception, acceptance of oneself as a deaf person, and to perceiving the benefits of having a CI (as measured by three NCIQ domains: self-esteem, activity limitations, and social interactions). On the other hand, negative self-perception, marginal deaf identity, and depressive symptoms were negatively related to SWL. There was no relationship between SWL and knowledge of sign language. Lower depressive symptoms and greater hearing loss were both significant predictors of SWL, although those who used two CIs generally had a lower SWL.

CONCLUSIONS

Prelingually deaf CI users with low SWL require psychological support in many spheres, including working through problems of deaf identity, self-acceptance, and depression. Additional research should involve diverse DHH CI users, including those with limited spoken Polish competency or sign language skills, as well as members of the Polish Deaf community.

摘要

引言

本研究调查了一组语前聋但接受口语教育的人工耳蜗(CI)使用者的生活满意度(SWL)水平。他们接受了一或两枚人工耳蜗(在儿童、青少年或成年时期),并且波兰语说得非常好。本研究考察了可能影响生活满意度的三个因素——心理社会因素、与耳聋/听力及沟通相关的因素,以及社会人口学因素。

方法

参与者为语前聋的人工耳蜗使用者,他们将熟练的波兰口语作为主要语言。他们在主流或融合学校(而非聋校)接受教育,且无其他残疾或严重疾病。使用5份问卷进行测量:生活满意度量表(SWLS)、我与他人问卷、患者健康问卷(PHQ - 9)、聋人身份发展量表(DIDS)以及奈梅亨人工耳蜗问卷(NCIQ)。

结果

该组的生活满意度水平与波兰标准人群相似。生活满意度与积极的自我认知、将自己接受为聋人以及感知到人工耳蜗带来的益处(由NCIQ的三个领域衡量:自尊、活动受限和社会互动)呈正相关。另一方面,消极的自我认知、边缘性聋人身份以及抑郁症状与生活满意度呈负相关。生活满意度与手语知识之间没有关系。较低的抑郁症状和较高的听力损失都是生活满意度的重要预测因素,尽管使用两枚人工耳蜗的人总体生活满意度较低。

结论

生活满意度较低的语前聋人工耳蜗使用者在许多方面需要心理支持,包括解决聋人身份认同、自我接受和抑郁等问题。进一步的研究应纳入不同的听障人工耳蜗使用者,包括波兰语口语能力有限或有手语技能的使用者,以及波兰聋人社区成员。

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