Department of Medical Ethics and Health Policy, University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, USA.
Department of Philosophy, Institute for Philosophy and Public Policy, George Mason University, Fairfax, Virginia, USA.
J Am Geriatr Soc. 2023 Nov;71(11):3566-3573. doi: 10.1111/jgs.18596. Epub 2023 Sep 12.
Decision-making capacity describes the ability to make a particular decision at a given time. People with Mild Cognitive Impairment (MCI) and mild stage dementia typically experience an associated erosion of their decisional abilities. Many could be said to have marginal capacity. These individuals are in a liminal space between adequate and inadequate capacity. Too often, marginal capacity is overlooked as a category: individuals are classified either as having capacity and being able to make decisions independently or as lacking capacity and needing a surrogate to make decisions for them. These approaches can, respectively, result in under- or overprotection of individuals with marginal capacity. A promising alternative approach is supported decision making. In supported decision making, a person with marginal capacity identifies a trusted person or network of persons to aid them in making their own decisions. Supported decision making is recognized by law in a growing number of states; it is important for geriatricians to be familiar with the concept, as they are increasingly likely to encounter it in their practice. Even in states where supported decision making is not formally recognized, it can be practiced informally, helping patients, care partners, and clinicians strike an appropriate balance between respecting autonomy and recognizing vulnerability. In this article, we describe supported decision making, discuss its ethical and legal foundations, and identify steps by which geriatricians can incorporate it into their practice.
决策能力是指在特定时间做出特定决策的能力。患有轻度认知障碍(MCI)和轻度痴呆症的人通常会经历决策能力的相应削弱。许多人可以说是有边缘能力。这些人处于能力充足和不足之间的边缘地带。通常情况下,边缘能力被忽视为一个类别:个体要么被归类为有能力并能够独立做出决策,要么被归类为缺乏能力并需要代理人来为他们做出决策。这些方法可能分别导致对具有边缘能力的个体的保护不足或过度保护。一种有前途的替代方法是支持决策。在支持决策中,具有边缘能力的人确定一个值得信赖的人或一群人来帮助他们做出自己的决策。支持决策在越来越多的州得到法律认可;老年病学家熟悉这个概念很重要,因为他们在实践中越来越有可能遇到它。即使在不正式承认支持决策的州,也可以非正式地实施,帮助患者、护理伙伴和临床医生在尊重自主权和认识到脆弱性之间取得适当的平衡。在本文中,我们描述了支持决策,讨论了它的伦理和法律基础,并确定了老年病学家可以将其纳入实践的步骤。