Riva-Rovedda Federica, Viottini Elena, Calzamiglia Marco, Manghera Fulvio, Manchovas Giorgia, Dal Molin Alberto, Campagna Sara, Busca Erica, Di Giulio Paola
Università degli Studi di Torino, Italia.
Centro Servizi per il Territorio ETS, Novara e VCO, Italia.
Assist Inferm Ric. 2023 Jul-Sep;42(3):152-157. doi: 10.1702/4095.40919.
. Patient and public involvement in research. Patient and public involvement (PPI) entails research being carried out 'with' members of the public, rather than 'to', 'about' or 'for' them. The word public can refer to patients, potential patients, carers and people who use health and social care services, people from organisations that represent people who use services as well as members of the public. People with lived experience of a particular service or health condition may add value to the research and even influence the research question. The involvement may occurr in any stage of the research process, but preferably since the very start, when the study is designed. To obtain a real involvement and participation some practical tips are suggested. In this paper advantages but also difficulties related to PPI are presented, based both on the literature but also from the authors' experience.
患者及公众参与研究。患者及公众参与(PPI)意味着研究是与公众成员“一起”开展,而非针对他们、关于他们或为他们而开展。“公众”一词可指代患者、潜在患者、护理人员、使用医疗和社会护理服务的人群、代表服务使用者的组织中的人员以及普通公众。有特定服务或健康状况实际体验的人可能会为研究增添价值,甚至影响研究问题。这种参与可能发生在研究过程的任何阶段,但最好从研究设计之初就开始。为实现真正的参与和投入,本文给出了一些实用建议。本文基于文献以及作者的经验,阐述了与患者及公众参与相关的优势和困难。