Department of Health, Eastern Switzerland University of Applied Sciences, St.Gallen, Switzerland
Pragmatic Evidence Lab, Research Center for Clinical Neuroimmunology and Neuroscience Basel (RC2NB), University of Basel and University Hospital Basel, Basel, Switzerland.
BMJ Open. 2023 Sep 20;13(9):e075664. doi: 10.1136/bmjopen-2023-075664.
Individuals with dementia spend most of the day without care, without encounters, and usually without activity. Although this has been proven in studies, there is a knowledge gap on how individuals with dementia experience these periods of time. Such knowledge would be highly relevant for health professionals and relatives to develop adequate strategies for dealing with these periods of time. The study aims to reconstruct periods of time without care and encounters from the perspective of individuals with dementia and formal and informal carers. The specific objective of this review is to provide a continuously updated overview of the topical evidence that may be used to guide data synthesis and interpretation within the study.
We conduct a living evidence map, based on a comprehensive systematic literature search in MEDLINE/PubMed, CINAHL, PsycINFO/Ovid and Web of Science Core Collection, citation-based searches and web searches. We include studies on times without care and encounters of individuals with dementia from the perspective of individuals with dementia themselves and formal or informal caregivers of any observational study design that were conducted in the institutional and domestic long-term care setting and published as journal article in English, French or German language without any restriction of the publication year. One reviewer screens titles, abstracts and full texts and extracts data. Key characteristics and results of the included studies are charted in a tabular format. The searches will be run and continuously updated throughout the duration of the overarching study (every 6 months for 2 years from 2023 to 2025).
Ethics approval is not required for this evidence map. We disseminate our findings via journal articles and conference proceedings as well as other formats.
This review protocol is uploaded on Open Science Framework (OSF; DOI 10.17605/OSF.IO/GDYZ9).
痴呆症患者大部分时间没有护理、没有互动，通常也没有活动。尽管这已在研究中得到证实，但对于痴呆症患者如何体验这些时间段，我们仍存在知识空白。这些知识对于卫生专业人员和亲属来说非常重要，可以帮助他们制定应对这些时间段的适当策略。本研究旨在从痴呆症患者和正式及非正式护理人员的角度重建无护理和无互动的时间段。本综述的具体目标是提供一个不断更新的主题证据概述，可用于指导研究中的数据综合和解释。
我们进行了一项实时证据图谱，基于对 MEDLINE/PubMed、CINAHL、PsycINFO/Ovid 和 Web of Science Core Collection 的全面系统文献检索、基于引文的检索和网络检索。我们纳入了从痴呆症患者自身和任何观察性研究设计的正式或非正式护理人员的角度研究痴呆症患者无护理和无互动时间段的研究，这些研究在机构和家庭长期护理环境中进行，以英文、法文或德文发表，无发表年份限制。一位评审员筛选标题、摘要和全文，并提取数据。纳入研究的关键特征和结果以表格形式呈现。检索将在整个研究期间（2023 年至 2025 年期间每 6 个月进行一次，为期 2 年）运行并不断更新。
本证据图谱不需要伦理批准。我们将通过期刊文章和会议记录以及其他格式传播我们的研究结果。
本综述方案已上传至开放科学框架（OSF；DOI 10.17605/OSF.IO/GDYZ9）。
