Director of Applied ELSI Research at Sage Bionetworks.
Research assistant professor of pediatrics and an associate director of the Institute for Public Health Genetics at the University of Washington.
Ethics Hum Res. 2023 Sep-Oct;45(5):34-38. doi: 10.1002/eahr.500181.
Impactful translational research requires new approaches to computational analysis and bioethics, both of which have been advanced by adoption of community-engagement strategies. Community knowledge and experience will hone data collection, research, and insights and accelerate the impact of derived translational applications to improve individual health, medical decision-making, and public health policy. In the context of translational research with big health data, meaningful community-researcher engagement will require developing and deploying coengagement tools across the research life cycle and developing approaches for novel coproduction.
有影响力的转化研究需要新的计算分析和生物伦理学方法,而这些方法都通过采用社区参与策略得到了推进。社区的知识和经验将完善数据收集、研究和见解,并加速转化应用的影响,以改善个人健康、医疗决策和公共卫生政策。在使用大型健康数据进行转化研究的背景下,有意义的社区-研究人员参与将需要在整个研究生命周期中开发和部署共同参与工具,并开发新的共同生产方法。