Lee Jenny J, Ogini Francis, Hashmi Muzhda, Nelson Belinda W, Carpenter Laurie, MacDonell Karen, Baptist Alan P
Division of Allergy & Clinical Immunology, University of Michigan School of Medicine, Ann Arbor, Mich.
Division of Hospital Medicine, Trinity Health IHA Medical Group, Ann Arbor, Mich.
J Allergy Clin Immunol Pract. 2024 Feb;12(2):355-360.e1. doi: 10.1016/j.jaip.2023.09.039. Epub 2023 Oct 4.
Asthma morbidity and mortality are disproportionately high in the Black population, especially among Black emerging adults (BEAs) (age 18-30 years). Few studies have been done to identify unique challenges to asthma care in BEAs.
To assess the challenges and barriers to asthma care BEAs experience.
We conducted virtual focus groups consisting of BEAs (n = 16) with a physician diagnosis of asthma. Discussion questions regarding asthma triggers, management, and challenges were used. Focus group discussions were recorded and transcribed verbatim. The transcripts were then coded by 3 coders using a thematic saturation approach.
Seven major domains were identified: heightened anxiety around asthma management; asthma symptoms interfering with school and/or work; asthma in social group setting; transitioning to adulthood leading to increased autonomy and financial independence; use of technology in asthma management; concerns regarding coronavirus disease 2019; and perceived discrimination and biases. These domains create complex barriers to optimal asthma management and overlapping elements were identified. Technology was described as a potential method to address these challenges.
BEAs with asthma have unique challenges due to age and race. Physicians should address these challenges through innovative means such as technology-based interventions.
黑人人群中哮喘的发病率和死亡率异常高,尤其是在黑人青年成年人(18至30岁)中。很少有研究致力于确定黑人青年成年人哮喘护理面临的独特挑战。
评估黑人青年成年人哮喘护理所经历的挑战和障碍。
我们开展了虚拟焦点小组,参与者为经医生诊断患有哮喘的黑人青年成年人(n = 16)。使用了关于哮喘触发因素、管理和挑战的讨论问题。焦点小组讨论进行了录音并逐字转录。然后由3名编码员采用主题饱和法对转录本进行编码。
确定了七个主要领域:哮喘管理方面的焦虑加剧;哮喘症状干扰学校和/或工作;社交场合中的哮喘;向成年过渡导致自主性和经济独立性增加;哮喘管理中技术的使用;对2019冠状病毒病的担忧;以及感知到的歧视和偏见。这些领域对最佳哮喘管理造成了复杂的障碍,并发现了重叠因素。技术被描述为应对这些挑战的一种潜在方法。
患有哮喘的黑人青年成年人由于年龄和种族面临独特的挑战。医生应通过基于技术的干预等创新手段应对这些挑战。