Hauch Holger, El Mohaui Naual, Sander Michael, Rellensmann Georg, Berthold Daniel, Kriwy Peter, Zernikow Boris, Wager Julia, Schneck Emmanuel
Department of Children's Pain Therapy and Pediatric Palliative Care, Faculty of Health, School of Medicine, Witten/Herdecke University, Witten, Germany.
Palliative Care Team for Children, University Children's Hospital, Giessen, Hesse, Germany.
Front Pediatr. 2023 Sep 27;11:1272706. doi: 10.3389/fped.2023.1272706. eCollection 2023.
The prevalence of children with life-limiting conditions (LLCs) is rising. It is characteristic for these children to require 24/7 care. In emergencies, families must decide to call the emergency medical service (EMS) or a palliative care team (PCT)-if available. For EMS teams, an emergency in a child with an LLC is a rare event. Therefore, EMS providers asked for a training unit (TU) to improve their knowledge and skills in pediatric palliative care.
The questions were as follows: whether a TU is feasible, whether its integration into the EMS training program was accepted, and whether an improvement of knowledge can be achieved.
We designed and implemented a brief TU based on findings of a previous study that included 1,005 EMS providers. The topics covered were: (1) basics in palliative home care, (2) theoretical aspects, and (3) practical aspects. After participating in the TU, the participants were given a questionnaire to re-evaluate their learning gains and self-confidence in dealing with emergencies in pediatric patients with LLC.
782 (77.8%) of 1,005 participants of the previous study responded to the questionnaire. The average age was 34.9 years (±10.7 years SD), and 75.3% were male. The average work experience was 11.4 years (±9.5 years SD), and 15.2% were medical doctors. We found an increase in theoretical knowledge and enhanced self-confidence in dealing with emergencies in patients with LLC (confidence: before training: 3.3 ± 2.0 SD; after training: 5.7 ± 2.1 SD; min.: 1; max.: 10; < 0.001). The participants changed their approaches to a fictitious case report from more invasive to less invasive treatment. Most participants wanted to communicate directly with PCTs and demanded a standard operating procedure (SOP) for treating patients with LLC. We discussed a proposal for an SOP with the participants.
EMS providers want to be prepared for emergencies in children with LLCs. A brief TU can improve their knowledge and confidence to handle these situations adequately. This TU is the first step to improve collaboration between PCTs and EMS teams.
患有危及生命疾病(LLCs)的儿童患病率正在上升。这些儿童需要全天候护理是其特点。在紧急情况下,如果有姑息治疗团队(PCT),家庭必须决定呼叫紧急医疗服务(EMS)还是PCT。对于EMS团队来说,LLC儿童的紧急情况是罕见事件。因此,EMS提供者要求设立一个培训单元(TU)来提高他们在儿科姑息治疗方面的知识和技能。
问题如下:TU是否可行,其纳入EMS培训计划是否被接受,以及知识是否能得到提高。
我们根据之前一项涉及1005名EMS提供者的研究结果设计并实施了一个简短的TU。涵盖的主题有:(1)姑息家庭护理基础,(2)理论方面,以及(3)实践方面。参加TU后,参与者会收到一份问卷,以重新评估他们在处理LLC儿科患者紧急情况方面的学习收获和自信心。
之前研究的1005名参与者中有782人(77.8%)回复了问卷。平均年龄为34.9岁(标准差±10.7岁),75.3%为男性。平均工作经验为11.4年(标准差±9.5年),15.2%为医生。我们发现理论知识有所增加,在处理LLC患者紧急情况时的自信心增强(信心:培训前:3.3±2.0标准差;培训后:5.7±2.1标准差;最小值:1;最大值:10;P<0.001)。参与者对一个虚构病例报告的处理方法从更具侵入性转变为侵入性较小的治疗。大多数参与者希望直接与PCT沟通,并要求制定治疗LLC患者的标准操作程序(SOP)。我们与参与者讨论了一份SOP提案。
EMS提供者希望为LLC儿童的紧急情况做好准备。一个简短的TU可以提高他们充分处理这些情况的知识和信心。这个TU是改善PCT和EMS团队之间合作的第一步。