Pettersson Sara, Klompstra Leonie, Jirwe Maria, Jaarsma Tiny
Linkoping University, Department of Health, Medicine and Caring Sciences, Linkoping, Sweden.
Red Cross University College, Department of Health Sciences, Huddinge, Sweden.
Patient Prefer Adherence. 2023 Oct 13;17:2557-2567. doi: 10.2147/PPA.S426908. eCollection 2023.
Migrants, especially from the Middle East, experience poorer health outcomes and face greater difficulties in accessing healthcare compared to native populations and there is a need for culturally appropriate education for this vulnerable group. The purpose of this study is to describe the process of developing a culturally appropriate tool to support self-care in migrants with type 2 diabetes.
In this Co-design study, a tool for supporting self-care in migrants with type 2 diabetes was developed. Migrant patients with type 2 diabetes, healthcare providers and researchers participated in the process, which was based on six elements; engage, plan, explore, develop, decide and change. From February 2021 to December 2022, idea groups were conducted, and a tool was developed through brainstorming, prioritizing and prototyping.
In total, 14 migrant patients, ten health care providers and four researchers participated in the Co-design process. The patients wished to receive information about type 2 diabetes self-care behaviour in their own languages. The healthcare providers asked for clear instructions on where to guide their patients regarding reliable information about diabetes in the patient's own language. All participants agreed that information can be presented in different formats, either: text (paper or online), audio-visual via recorded videos and/or lectures and pictures.
The Co-design process led to several important insights and experiences related to the importance of diverse cultural backgrounds. When conducting a Co-design study with end-users as stakeholders, it is significant that the stakeholders have a diverse background in experiences, both as patients as well as those who deliver or implement the health service. In this study it was of great importance to include patients with diverse backgrounds regarding; gender, age, health literacy, occupation, years living in Sweden and duration of diabetes.
与本地居民相比,移民,尤其是来自中东的移民,健康状况较差,在获得医疗保健方面面临更大困难,因此需要为这一弱势群体提供适合其文化背景的教育。本研究的目的是描述开发一种适合文化背景的工具以支持2型糖尿病移民自我护理的过程。
在这项协同设计研究中,开发了一种支持2型糖尿病移民自我护理的工具。2型糖尿病移民患者、医疗服务提供者和研究人员参与了该过程,该过程基于六个要素:参与、规划、探索、开发、决策和变革。从2021年2月到2022年12月,开展了创意小组活动,并通过头脑风暴、优先级排序和原型设计开发了一种工具。
共有14名移民患者、10名医疗服务提供者和4名研究人员参与了协同设计过程。患者希望以自己的语言获得有关2型糖尿病自我护理行为的信息。医疗服务提供者要求提供明确的指导,说明在哪里以患者自己的语言为其提供有关糖尿病的可靠信息。所有参与者都同意信息可以以不同的形式呈现,即:文本(纸质或在线)、通过录制视频和/或讲座以及图片呈现的视听资料。
协同设计过程带来了一些与多元文化背景重要性相关的重要见解和经验。当以最终用户为利益相关者进行协同设计研究时,利益相关者在经验方面具有多元背景非常重要,包括作为患者以及提供或实施医疗服务的人员。在本研究中,纳入具有不同背景的患者非常重要,这些背景包括:性别、年龄、健康素养、职业、在瑞典居住的年限以及糖尿病病程。