家庭癌症照顾者内疚体验动态的定性研究。
A qualitative exploration of the dynamics of guilt experience in family cancer caregivers.
机构信息
Faculty of Social Sciences (Health), Tampere University, Tampere, Finland.
Universiti Sains Malaysia, George Town, Malaysia.
出版信息
Support Care Cancer. 2023 Oct 27;31(12):659. doi: 10.1007/s00520-023-08060-3.
Abstract
Caregiving for cancer patients can cause stress among family caregivers. Caregiving stress is also associated with guilt as they cannot provide adequate care for cancer patients. However, guilt among family caregivers of cancer patients is poorly understood. This qualitative study aimed to explore the dynamics of guilt feelings in families that care for cancer patients. This study involved 45 family caregivers of cancer patients. Thematic data analysis was conducted. There were six themes emerging. Caregiving can be challenging, guilt and blame, guilt due to lack of self-capacity, guilt for neglecting others, no guilt at all, and discussion of guilt and blame as a caregiver. This study offers insight into social workers regarding the challenges and experiences faced by family caregivers of cancer patients. Appropriate health interventions and support should be provided to family caregivers of cancer patients to improve their well-being.
摘要
照顾癌症患者会给家庭照顾者带来压力。照顾压力也与内疚感有关，因为他们无法为癌症患者提供足够的照顾。然而，癌症患者家庭照顾者的内疚感却鲜为人知。这项定性研究旨在探讨照顾癌症患者的家庭中内疚感的动态变化。本研究涉及 45 名癌症患者的家庭照顾者。进行了主题数据分析。出现了六个主题。照顾可能具有挑战性，内疚和责备，由于缺乏自我能力而产生的内疚，因忽视他人而产生的内疚，完全没有内疚，以及作为照顾者讨论内疚和责备。这项研究为社会工作者提供了有关癌症患者家庭照顾者所面临的挑战和经验的见解。应该为癌症患者的家庭照顾者提供适当的健康干预和支持，以提高他们的幸福感。
相似文献
1
A qualitative exploration of the dynamics of guilt experience in family cancer caregivers.家庭癌症照顾者内疚体验动态的定性研究。
Support Care Cancer. 2023 Oct 27;31(12):659. doi: 10.1007/s00520-023-08060-3.
2
"I Feel Guilty". Exploring Guilt-Related Dynamics in Family Caregivers of People with Dementia.“我感到内疚”。探索痴呆症患者的家庭照顾者的内疚相关动态。
Clin Gerontol. 2022 Oct-Dec;45(5):1294-1303. doi: 10.1080/07317115.2020.1769244. Epub 2020 Jun 4.
3
Family dynamics in dementia care: A phenomenological exploration of the experiences of family caregivers of relatives with dementia.痴呆症护理中的家庭动态：对痴呆症亲属的家庭照顾者的体验的现象学探索。
J Psychiatr Ment Health Nurs. 2022 Dec;29(6):861-872. doi: 10.1111/jpm.12822. Epub 2022 Feb 2.
4
Family caregivers and guilt in the context of cancer care.癌症护理背景下的家庭照顾者与内疚感。
Psychosomatics. 2008 Nov-Dec;49(6):511-9. doi: 10.1176/appi.psy.49.6.511.
5
The emotional experience of caregiving in dementia: Feelings of guilt and ambivalence underlying narratives of family caregivers.痴呆症患者护理的情感体验：家庭护理者叙事背后的内疚感和矛盾情绪。
Dementia (London). 2021 Oct;20(7):2248-2260. doi: 10.1177/1471301221989604. Epub 2021 Feb 3.
6
Separation characterized by responsibility and guilt: Family caregivers' experiences with palliative care for a close family member with severe dementia in long-term care facilities.分离的特点是责任和内疚：长期护理机构中家庭照顾者对患有严重痴呆症的亲密家庭成员进行姑息治疗的体验。
Dementia (London). 2021 Feb;20(2):518-533. doi: 10.1177/1471301219898341. Epub 2020 Jan 9.
7
[Guilt and well-being in institutionalized family caregivers of dependent older adult people].[依赖他人的老年人的机构化家庭照料者的内疚感与幸福感]
Rev Esp Geriatr Gerontol. 2023 Mar-Apr;58(2):84-88. doi: 10.1016/j.regg.2023.02.001. Epub 2023 Mar 13.
8
Experiences of family caregivers in forensic mental health care-A qualitative evidence synthesis.法医精神健康照护中家庭照顾者的体验：定性证据综合
J Psychiatr Ment Health Nurs. 2023 Aug;30(4):663-678. doi: 10.1111/jpm.12910. Epub 2023 Feb 20.
9
Primary Caregivers' Support for Female Family Members With Breast or Gynecologic Cancer.初级护理人员对患有乳腺癌或妇科癌症的女性家庭成员的支持。
Cancer Nurs. 2016 May-Jun;39(3):E49-55. doi: 10.1097/NCC.0000000000000285.
10
"How Long Can I Carry On?" The Need for Palliative Care in Parkinson's Disease: A Qualitative Study from the Perspective of Bereaved Family Caregivers.“我还能撑多久？”——从帕金森病丧亲照料者的角度出发对姑息治疗需求的定性研究。
J Parkinsons Dis. 2020;10(4):1631-1642. doi: 10.3233/JPD-191884.
引用本文的文献
1
Developing Burdens in Caring for a Relative with a Cancer Diagnosis: A Qualitative Study of Lived Experiences of Family Caregivers in Saudi Arabia.照顾癌症亲属的负担：沙特阿拉伯家庭照顾者生活经历的定性研究
Nurs Rep. 2025 Jun 26;15(7):233. doi: 10.3390/nursrep15070233.
2
Experiences of 'Indirect' Illness in Family Caregivers of Chronically Ill and Older Adults: A Qualitative Study.慢性病患者及老年人家庭照顾者的“间接”患病经历：一项定性研究
Int J Environ Res Public Health. 2025 Feb 8;22(2):240. doi: 10.3390/ijerph22020240.
3
Navigating limited resources: experiences of caregivers for elderly terminal cancer patients in a region with limited palliative care services.应对有限资源：姑息治疗服务有限地区老年晚期癌症患者照料者的经历
Support Care Cancer. 2025 Feb 20;33(3):207. doi: 10.1007/s00520-025-09270-7.
4
Navigating the emotional landscape: exploring caregivers' journey alongside breast cancer survivors with chronic pain.穿越情感版图：探索照顾者陪伴患有慢性疼痛的乳腺癌幸存者的历程。
Support Care Cancer. 2024 Dec 16;33(1):32. doi: 10.1007/s00520-024-09064-3.
5
Dyadic effects of perceived stress, relationship satisfaction and distress disclosure on emotional distress in colorectal cancer patients and their family caregivers: An actor-partner interdependence mediation model.感知压力、关系满意度和痛苦表露对结直肠癌患者及其家庭照顾者情绪困扰的二元效应：一个行为者-伙伴相互依赖中介模型。
Asia Pac J Oncol Nurs. 2024 Aug 29;11(10):100580. doi: 10.1016/j.apjon.2024.100580. eCollection 2024 Oct.
6
Motivation in caregiving among mothers of children with intellectual and developmental disabilities in Iran: A qualitative study.伊朗智障和发育障碍儿童母亲的照护动机：一项定性研究。
BMC Pediatr. 2024 Jul 25;24(1):472. doi: 10.1186/s12887-024-04957-y.
本文引用的文献
1
Quality of life and perceived burden of the primary caregiver of patients aged 70 and over with cancer 5 years after initial treatment.70 岁及以上癌症初治患者 5 年后主要照顾者的生活质量和感知负担。
Support Care Cancer. 2023 Feb 2;31(2):147. doi: 10.1007/s00520-023-07594-w.
2
The challenges characterizing the lived experience of caregiving. A qualitative study in the field of spinal cord injury.照顾者生活体验的特点。一项脊髓损伤领域的定性研究。
Spinal Cord. 2021 May;59(5):493-503. doi: 10.1038/s41393-021-00618-4. Epub 2021 Mar 19.
3
The Psychosocial Impact of Spouse-Caregiver Chronic Health Conditions and Personal History of Cancer on Well-being in Patients With Advanced Cancer and Their Caregivers.配偶-照顾者慢性健康状况和个人癌症史对晚期癌症患者及其照顾者的幸福感的心理社会影响。
J Pain Symptom Manage. 2021 Aug;62(2):303-311. doi: 10.1016/j.jpainsymman.2020.12.008. Epub 2020 Dec 19.
4
Palliative Care Interventions from a Social Work Perspective and the Challenges Faced by Patients and Caregivers during COVID-19.从社会工作视角看姑息治疗干预措施以及新冠疫情期间患者和照护者面临的挑战
Indian J Palliat Care. 2020 Jun;26(Suppl 1):S58-S62. doi: 10.4103/IJPC.IJPC_149_20. Epub 2020 Jun 30.
5
Equity and the financial costs of informal caregiving in palliative care: a critical debate.在姑息治疗中，公平和非正式护理的财务成本：一场批判性辩论。
BMC Palliat Care. 2020 May 19;19(1):71. doi: 10.1186/s12904-020-00577-2.
6
Unmet needs of patients with cancer in their last year of life as described by caregivers in a developing world setting: a qualitative study.发展中国家照护者描述的癌症终末期患者未满足的需求：一项定性研究。
BMC Palliat Care. 2020 Jan 24;19(1):13. doi: 10.1186/s12904-020-0516-4.
7
Post-Traumatic Growth among Family Caregivers of Cancer Patients and Its Association with Social Support and Hope.癌症患者家庭照顾者的创伤后成长及其与社会支持和希望的关联。
Int J Community Based Nurs Midwifery. 2019 Oct;7(4):319-328. doi: 10.30476/IJCBNM.2019.73959.0.
8
Employment Outcomes, Financial Burden, Anxiety, and Depression Among Caregivers of African American Cancer Survivors.非裔美国癌症幸存者的照顾者的就业结果、经济负担、焦虑和抑郁。
JCO Oncol Pract. 2020 Mar;16(3):e221-e233. doi: 10.1200/JOP.19.00410. Epub 2019 Sep 7.
9
Economic Burden Associated with Cancer Caregiving.癌症照护相关的经济负担。
Semin Oncol Nurs. 2019 Aug;35(4):333-336. doi: 10.1016/j.soncn.2019.06.003. Epub 2019 Jun 20.
10
Cancer, a relational disease .癌症，一种关联性疾病。
Int J Qual Stud Health Well-being. 2019 Dec;14(1):1622354. doi: 10.1080/17482631.2019.1622354.
Zotero 插件