胚胎性腹部肿瘤患儿的健康相关生活质量与心理健康
Health-Related Quality of Life and Mental Health of Children with Embryonal Abdominal Tumors.
作者信息
Behrendt Paulina, Boettcher Michael, Zierke Kira Tabea, Najem Safiullah, Zapf Holger, Reinshagen Konrad, Wößmann Wilhelm, Boettcher Johannes
机构信息
Department of Pediatric Surgery, University Medical Center Hamburg-Eppendorf, Martinistrasse 52, 20246 Hamburg, Germany.
Department of Pediatric Surgery, University Medical Center Mannheim, University Heidelberg, Theodor-Kutzner-Ufer 1-3, 68167 Mannheim, Germany.
出版信息
Children (Basel). 2023 Oct 23;10(10):1720. doi: 10.3390/children10101720.
(1) Background: Embryonal abdominal tumors are one of the most common entities of solid childhood cancer. The present study investigates the Health-Related Quality of Life (HRQoL) and the mental health of children to obtain a comprehensive picture of their health status and uncover a possible gap in healthcare. (2) Methods: The sample consisted of 54 children who were treated for embryonal abdominal tumors and a control group of 46 children who received uncomplicated outpatient surgery. The HRQoL and the mental health were assessed by the parent proxy reports of the questionnaires Pediatric Quality of Life Inventory (PedsQL) and Strengths and Difficulties Questionnaire (SDQ). (3) Results: Children with embryonal abdominal tumors showed significantly lower HRQoL and mental health values compared to the norm data. The index group showed lower values in the social subscales of HRQoL and mental health compared to the control group. (4) Conclusions: Embryonal abdominal tumors affect the well-being of children. There is still a gap in healthcare due to children's HRQoL and mental health, especially regarding social development. It is essential to further advance the psychological care of children and improve their chances to develop social relationships.
(1) 背景：胚胎性腹部肿瘤是儿童实体癌中最常见的类型之一。本研究调查儿童的健康相关生活质量（HRQoL）和心理健康状况，以全面了解他们的健康状况，并发现医疗保健中可能存在的差距。(2) 方法：样本包括54名接受胚胎性腹部肿瘤治疗的儿童和46名接受简单门诊手术的儿童组成的对照组。HRQoL和心理健康状况通过家长代理报告的问卷《儿童生活质量量表》（PedsQL）和《长处与困难问卷》（SDQ）进行评估。(3) 结果：与常模数据相比，患有胚胎性腹部肿瘤的儿童HRQoL和心理健康值显著较低。与对照组相比，指标组在HRQoL和心理健康的社会子量表中得分较低。(4) 结论：胚胎性腹部肿瘤会影响儿童的幸福感。由于儿童的HRQoL和心理健康，尤其是在社会发展方面，医疗保健仍存在差距。进一步推进儿童心理护理并改善他们发展社会关系的机会至关重要。
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