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Conceptualising, operationalising, and measuring trust in participatory health research networks: a scoping review.概念化、操作化和衡量参与式健康研究网络中的信任:范围综述。
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系列:公众参与研究。第 2 部分:全科医生和初级保健研究人员与健康研究中的少数族裔社区合作,共同努力解决不平等问题。

Series: Public engagement with research. Part 2: GPs and primary care researchers working inclusively with minoritised communities in health research to help address inequalities.

机构信息

Centre for Evidence Based Medicine | Nuffield Department of Primary Care Health Sciences |, University of Oxford Radcliffe Primary Care Building, University of Oxford, Oxford, UK.

Public Contributor, London, UK.

出版信息

Eur J Gen Pract. 2024 Dec;30(1):2322996. doi: 10.1080/13814788.2024.2322996. Epub 2024 Mar 13.

DOI:10.1080/13814788.2024.2322996
PMID:38477291
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10939099/
Abstract

Public engagement in health research is vital for addressing health disparities and promoting inclusivity among minoritised communities who often face barriers to accessing healthcare. Minoritised communities are groups, which have been made minorities by a dominant culture, race, ethnic group and/or social class and may experience health inequalities as a result. By incorporating diverse perspectives and lived experiences of minoritised communities, this approach aims to achieve contextually relevant research outcomes that reduce health inequalities and improve overall well-being. However, underrepresentation and lack of inclusivity challenges persist, necessitating the establishment of inclusive partnerships and grassroots participatory methodologies. To foster inclusive public engagement, it is important to overcome structural and cultural barriers, address socioeconomic challenges, and build trust with minoritised communities. This can be achieved by promoting a cultural shift that values inclusivity, providing comprehensive training to researchers, and collecting rigorous data on engagement demographics for transparency and accountability. Involving minoritised communities in decision-making through participatory research approaches enhances trust and yields successful outcomes. Additionally, allocating sufficient resources, collaborating in co-production, and prioritising the diverse needs and perspectives of stakeholders contribute to fostering inclusive public engagement in research. Overall, inclusive engagement practices particularly in primary care research have the potential to reduce health inequalities and cater to the unique requirements of minoritised communities, thereby creating more impactful outcomes and promoting equitable healthcare access.

摘要

公众参与健康研究对于解决健康不平等问题以及促进少数群体社区的包容性至关重要,这些社区常常面临获得医疗保健的障碍。少数群体社区是指那些因主流文化、种族、族裔群体和/或社会阶层而成为少数群体的群体,他们可能因此面临健康不平等问题。通过纳入少数群体社区的多样化观点和生活经验,这种方法旨在实现具有上下文相关性的研究结果,从而减少健康不平等现象,提高整体幸福感。然而,代表性不足和缺乏包容性的挑战依然存在,需要建立包容性的伙伴关系和基层参与性方法。为了促进包容性的公众参与,必须克服结构性和文化障碍,解决社会经济挑战,并与少数群体社区建立信任。这可以通过促进重视包容性的文化转变、为研究人员提供全面的培训以及为参与度数据收集透明度和问责制提供严格的数据来实现。通过参与性研究方法让少数群体社区参与决策,可以增强信任,并取得成功的结果。此外,分配足够的资源、合作进行共同生产以及优先考虑利益相关者的多样化需求和观点,有助于促进研究中的包容性公众参与。总的来说,包容性参与实践,特别是在初级保健研究中,有可能减少健康不平等现象,并满足少数群体社区的独特需求,从而产生更有影响力的结果,并促进公平的医疗保健机会。