O'Neill Linda, Brennan Louise, Sheill Grainne, Connolly Deirdre, Guinan Emer, Hussey Juliette
Discipline of Physiotherapy, School of Medicine, Trinity College Dublin, the University of Dublin, Dublin 8, Ireland.
Trinity St James's Cancer Institute, Dublin, Ireland.
JMIR Cancer. 2023 Nov 9;9:e46077. doi: 10.2196/46077.
The COVID-19 pandemic accelerated the use of telehealth in cancer care and highlighted the potential of telehealth as a means of delivering the much-needed rehabilitation services for patients living with the side effects of cancer and its treatments.
This mixed methods study aims to explore patients' experiences of telehealth and their preferences regarding the use of telehealth for cancer rehabilitation to inform service development.
The study was completed in 2 phases from October 2020 to November 2021. In phase 1, an anonymous survey (web- and paper-based) exploring the need, benefits, barriers, facilitators, and preferences for telehealth cancer rehabilitation was distributed to survivors of cancer in Ireland. In phase 2, survivors of cancer were invited to participate in semistructured interviews exploring their experiences of telehealth and its role in cancer rehabilitation. Interviews were conducted via telephone or video call following an interview guide informed by the results of the survey and transcribed verbatim, and reflexive thematic analysis was performed using a qualitative descriptive approach.
A total of 48 valid responses were received. The respondents were at a median of 26 (range 3-256) months after diagnosis, and 23 (48%) of the 48 participants had completed treatment. Of the 48 respondents, 31 (65%) reported using telehealth since the start of the pandemic, 15 (31%) reported having experience with web-based cancer rehabilitation, and 43 (90%) reported a willingness for web-based cancer rehabilitation. A total of 26 (54%) of the 48 respondents reported that their views on telehealth had changed positively since the start of the pandemic. Semistructured interviews were held with 18 survivors of cancer. The mean age of the participants was 58.9 (SD 8.24) years, 56% (10/18) of the participants were female, and 44% (8/18) of the participants were male. Reflexive thematic analysis identified 5 key themes: telehealth improves accessibility to cancer rehabilitation for some but is a barrier for others, lived experiences of the benefits of telehealth in survivorship, the value of in-person health care, telehealth in cancer care and COVID-19 (from novelty to normality), and the future of telehealth in cancer rehabilitation.
Telehealth is broadly welcomed as a mode of cancer rehabilitation for patients living with and beyond cancer in Ireland. However, issues regarding accessibility and the importance of in-person care must be acknowledged. Factors of convenience, time savings, and cost savings indicate that telehealth interventions are a desirable patient-centered method of delivering care when performed in suitable clinical contexts and with appropriate populations.
新冠疫情加速了远程医疗在癌症护理中的应用,并凸显了远程医疗作为为癌症及其治疗副作用患者提供急需康复服务手段的潜力。
这项混合方法研究旨在探索患者对远程医疗的体验以及他们对使用远程医疗进行癌症康复的偏好,以为服务发展提供信息。
该研究于2020年10月至2021年11月分两个阶段完成。在第一阶段,向爱尔兰的癌症幸存者发放了一份匿名调查问卷(基于网络和纸质),以探讨远程医疗癌症康复的需求、益处、障碍、促进因素和偏好。在第二阶段,邀请癌症幸存者参与半结构化访谈,以探索他们对远程医疗的体验及其在癌症康复中的作用。访谈通过电话或视频通话进行,依据调查问卷结果制定访谈指南,逐字记录访谈内容,并采用定性描述方法进行反思性主题分析。
共收到48份有效回复。受访者诊断后的中位时间为26个月(范围3 - 256个月),48名参与者中有23名(48%)已完成治疗。在48名受访者中,31名(65%)报告自疫情开始以来使用过远程医疗,15名(31%)报告有基于网络的癌症康复经验,43名(90%)报告愿意接受基于网络的癌症康复。48名受访者中有26名(54%)报告自疫情开始以来他们对远程医疗的看法有了积极改变。对18名癌症幸存者进行了半结构化访谈。参与者的平均年龄为58.9岁(标准差8.24),56%(10/18)的参与者为女性,44%(8/18)的参与者为男性。反思性主题分析确定了5个关键主题:远程医疗对一些人改善了癌症康复的可及性,但对另一些人却是障碍;远程医疗在幸存者生活中的益处的实际体验;面对面医疗保健的价值;癌症护理中的远程医疗与新冠疫情(从新奇到常态);以及远程医疗在癌症康复中的未来。
在爱尔兰,远程医疗作为癌症康复模式受到癌症患者及康复期患者的广泛欢迎。然而,必须认识到可及性问题以及面对面护理的重要性。便利性、节省时间和节省成本等因素表明,在合适的临床环境和针对合适人群时,远程医疗干预是以患者为中心的理想护理提供方式。