Research Center in a Minority Institution, Florida International University (FIU-RCMI), Miami, FL 33199, USA.
Robert Stempel College of Public Health and School of Social Work, Florida International University, Miami, FL 33199, USA.
Int J Environ Res Public Health. 2023 Nov 6;20(21):7026. doi: 10.3390/ijerph20217026.
Ensuring equitable chronic kidney disease (CKD) education for Latine patients with low health literacy and low English proficiency stands as a critical challenge, and the "Caridad Awareness and Education" (CARE) initiative represents our ongoing effort to address this imperative issue. In collaboration with twenty-three patients living with CKD, diabetes and/or hypertension and twelve trained Community Health Workers (CHWs) from diverse Latine subgroups, we conducted a research initiative funded by the National Kidney Foundation. Our primary objective was to co-design and test culturally tailored patient education materials (PEMs) for underserved Latine adults at risk for or diagnosed with CKD. We effectively integrated Community-Engaged Research (CEnR) principles with a Human-Centered Design (HCD) approach to create a range of CKD-PEM prototypes in Spanish. Patient preferences for printed educational materials were clear. They favored printed materials that incorporated visual content with concise text over digital, email, texts, or online resources and personalized phone outreach and the involvement of CHWs. Additionally, patients identified their unwavering commitment to their families as a forceful motivator for caring for their kidney health. Currently, a culturally and linguistically tailored CKD flipchart for one-on-one education, led by CHWs, is undergoing a pilot testing phase involving a sample of one hundred Latine patients at risk for or diagnosed with CKD. This innovative approach signifies a commitment to amplifying the insights and expertise of the Latine community afflicted by kidney health disparities, effectively embracing a CEnR to forge meaningful and impactful CKD-PEMs.
确保患有低健康素养和低英语水平的拉丁裔慢性肾脏病 (CKD) 患者获得公平的 CKD 教育，这是一个关键挑战，而“Caridad 意识和教育” (CARE) 计划代表了我们正在努力解决这一紧迫问题。我们与 23 名患有 CKD、糖尿病和/或高血压的拉丁裔患者以及 12 名来自不同拉丁裔群体的经过培训的社区卫生工作者 (CHW) 合作，开展了一项由国家肾脏基金会资助的研究计划。我们的主要目标是共同设计和测试针对服务不足的拉丁裔成年人的文化上合适的 CKD 患者教育材料 (PEM)，这些成年人有患 CKD 的风险或已被诊断出患有 CKD。我们有效地将社区参与式研究 (CEnR) 原则与以人为中心的设计 (HCD) 方法相结合，用西班牙语创建了一系列 CKD-PEM 原型。患者对印刷教育材料的偏好是明确的。他们喜欢包含视觉内容和简洁文字的印刷材料，而不是数字、电子邮件、文本或在线资源，以及个性化电话外呼和 CHW 的参与。此外，患者表示，他们对家庭的坚定承诺是他们关心肾脏健康的有力动力。目前，一种由 CHW 主导的、针对一对一教育的、具有文化和语言针对性的 CKD 翻页图正在进行一项涉及一百名有患 CKD 风险或已被诊断出患有 CKD 的拉丁裔患者的试点测试阶段。这种创新方法代表了致力于放大受肾脏健康差异影响的拉丁裔社区的见解和专业知识，有效地采用 CEnR 来创建有意义和有影响力的 CKD-PEM。
