Belko Sara, Hutchinson Morgan, Hayden Geoffrey, Pugliese Robert
Health Design Lab, Thomas Jefferson University, Philadelphia, PA, USA.
Sidney Kimmel Medical College, Thomas Jefferson University, Philadelphia, PA, USA.
J Diabetes Sci Technol. 2024 Jan;18(1):53-58. doi: 10.1177/19322968231213394. Epub 2023 Nov 12.
More than 537 million adults worldwide are living with diabetes and navigating its health and lifestyle impact. People living with diabetes face unique challenges in managing their diet and exercise, monitoring their blood glucose, self-administering medications, and effectively integrating their disease into their social activities. In addition to diabetes being a challenging multifactorial disease, these challenges arise in part from patients having to navigate a complex ecosystem where sectors are siloed and its services, products, and environments are not designed with the patient in mind. To address these challenges, the ecosystem of diabetes care, including researchers, healthcare professionals, product and service developers, and policymakers, can adopt co-design methodologies providing patients and caregivers a seat at the table when creating solutions. Co-design in healthcare is an approach to problem-solving where patients are viewed as equal partners providing their own unique perspective and expertise, to design and develop devices, services, and environments. Co-design emphasizes the value of the user's insights and expertise. Incorporating patient perspective has been shown to increase patient empowerment and satisfaction, enhance healthcare technology value, and strengthen the collaboration between the patient and their interprofessional ecosystem. We describe opportunity spaces, successful examples, and strategies to better engage patients in research, policymaking, and healthcare product, service, and environment development through co-design methods. By incorporating co-design, the ecosystem of diabetes care can deliver more effective, high-quality patient-centered care, products, and services.
全球有超过5.37亿成年人患有糖尿病,并应对其对健康和生活方式的影响。糖尿病患者在管理饮食和运动、监测血糖、自我给药以及有效地将疾病融入社交活动方面面临着独特的挑战。除了糖尿病是一种具有挑战性的多因素疾病外,这些挑战部分源于患者必须在一个复杂的生态系统中周旋,其中各个部门相互孤立,其服务、产品和环境并非以患者为中心设计。为应对这些挑战,糖尿病护理生态系统,包括研究人员、医疗保健专业人员、产品和服务开发人员以及政策制定者,可以采用共同设计方法,在创建解决方案时让患者和护理人员有参与权。医疗保健领域的共同设计是一种解决问题的方法,将患者视为平等的合作伙伴,他们能提供自己独特的观点和专业知识,以设计和开发设备、服务及环境。共同设计强调用户见解和专业知识的价值。已证明纳入患者视角可增强患者的自主权和满意度,提升医疗技术价值,并加强患者与其跨专业生态系统之间的协作。我们描述了通过共同设计方法让患者更好地参与研究、政策制定以及医疗保健产品、服务和环境开发的机会空间、成功案例和策略。通过纳入共同设计,糖尿病护理生态系统可以提供更有效、高质量的以患者为中心的护理、产品和服务。