Hua Yiting, Lu Hujie, Dai Jingyao, Zhou Yewei, Zhou Wenzhe, Wang Aisun, Chen Yanyan, Liang Youping
School of Ophthalmology and Optometry, Wenzhou Medical University, 270 West Xueyuan Road, Wenzhou, Zhejiang, 325027, China.
National Clinical Research Center for Ocular Diseases, Eye Hospital, Wenzhou Medical University, 270 West Xueyuan Road, Wenzhou, Zhejiang, 325027, China.
BMC Nurs. 2023 Nov 14;22(1):426. doi: 10.1186/s12912-023-01527-y.
Self-management plays an important role in the disease management of glaucoma patients. The effectiveness of the program can be improved by assessing the patient's perspective and needs to tailor self-management support. Most studies have focused on assessing one of these self-management behaviours, such as medication adherence, and there is a lack of systematic assessment of the support needs and challenges of self-management for patients with glaucoma. Therefore, in this study, we conducted an in-depth investigation into the self-management challenges and support needs of patients with primary glaucoma, providing a basis for nursing staff to implement self-management support.
The phenomenological method and semistructured interviews were used in this study. A total of 20 patients with primary glaucoma were recruited between June and December 2022. Colaizzi's analysis method was used to analyse the interview data.
Challenges for patients include becoming an expert in glaucoma, managing negative emotions, adapting to daily life changes and resuming social activities. To address these challenges, four themes of patient self-management support needs were identified: (1) health information support, (2) social support, (3) psychological support, and (4) daily living support.
Patients with primary glaucoma experience varying degrees of challenge in dealing with medical, emotional, and social aspects. Comprehending the support needs of patients, healthcare professionals should deliver targeted, personalized and comprehensive self-management interventions to enhance their capacity of patients to perform self-management and improve their quality of life.
自我管理在青光眼患者的疾病管理中起着重要作用。通过评估患者的观点和需求来定制自我管理支持，可以提高该项目的有效性。大多数研究都集中在评估这些自我管理行为中的一种，如药物依从性，而对于青光眼患者自我管理的支持需求和挑战缺乏系统的评估。因此，在本研究中，我们对原发性青光眼患者的自我管理挑战和支持需求进行了深入调查，为护理人员实施自我管理支持提供依据。
本研究采用现象学方法和半结构化访谈。2022年6月至12月期间共招募了20例原发性青光眼患者。采用Colaizzi分析法对访谈数据进行分析。
患者面临的挑战包括成为青光眼专家、管理负面情绪、适应日常生活变化和恢复社交活动。为应对这些挑战，确定了患者自我管理支持需求的四个主题：（1）健康信息支持，（2）社会支持，（3）心理支持，以及（4）日常生活支持。
原发性青光眼患者在应对医疗、情感和社会方面面临不同程度的挑战。医护人员应了解患者的支持需求，提供有针对性、个性化和全面的自我管理干预措施，以提高患者的自我管理能力，改善其生活质量。
