Azimian Mojtaba, Arian Moslem, Shojaei Seyedeh Fahimeh, Doostian Younes, Ebrahimi Barmi Banafsheh, Khanjani Mohammad Saeed
Department of Clinical Sciences, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
Department of Counseling, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
Iran J Psychiatry. 2021 Jul;16(3):260-270. doi: 10.18502/ijps.v16i3.6251.
Multiple sclerosis is a chronic, progressive neurological disease that, due to its special nature, has various physical and mental influences on the patients and their family's lives, decreasing the quality of life and threatening the meaning of life. The purpose of the present study was to evaluate the effectiveness of the group hope therapy training on the quality and the meaning of life in patients with multiple sclerosis and their family caregivers. This quasi-experimental study was performed using pretest-posttest and control group. Thirty patients with multiple sclerosis along with 30 family caregivers who got low to medium scores on the Meaning in Life questionnaire by Steger (MLQ), Multiple Sclerosis Impact Scale (MSIS-29), and the Iranian Quality of Life questionnaire (IRQOL) for the caregivers were selected purposively. Then, the patients were randomly divided into two groups of 15 individuals in experimental and 15 individuals in control groups. The caregivers were grouped in the same manner. The protocol of group hope therapy training was carried out through eight two-hour sessions in two weeks separately on two experimental groups (the patients and the caregivers), and finally the posttest was given to four experimental and control groups. The results of the data showed that the meaning of life in both the patient and the caregiver experimental groups increased significantly (P < 0.001), but there was no significant change in the patient and the caregiver control groups. Group hope therapy training is an effective intervention for improving the meaning of life and the quality of life in patients with multiple sclerosis. Also, any psychological intervention that aims to improve the quality of life in patients in an advanced stage of the disease requires attention to both the physical and the mental issues at the same time. Although group hope therapy training has improved the meaning of life in such patients, it did not have a significant impact on the quality of life. Therefore, paying attention to the stages of multiple sclerosis and the physical condition of the patients during the therapeutic intervention and adopting necessary complementary interventions seems to be essential.
多发性硬化症是一种慢性进行性神经疾病，因其特殊性质，对患者及其家庭生活产生各种身心影响，降低生活质量并威胁生命意义。本研究的目的是评估团体希望疗法训练对多发性硬化症患者及其家庭照顾者生活质量和生命意义的有效性。 这项准实验研究采用前测-后测和对照组的方法进行。通过Steger的生命意义问卷（MLQ）、多发性硬化症影响量表（MSIS-29）以及照顾者的伊朗生活质量问卷（IRQOL），有目的地选取了30名多发性硬化症患者以及30名家庭照顾者，他们在这些问卷上的得分处于低到中等水平。然后，将患者随机分为实验组15人、对照组15人两组。照顾者也以同样方式分组。团体希望疗法训练方案在两周内分别通过八个两小时的课程，在两个实验组（患者组和照顾者组）中实施，最后对四个实验组和对照组进行后测。 数据结果显示，患者和照顾者实验组的生命意义均显著增加（P < 0.001），但患者和照顾者对照组没有显著变化。 团体希望疗法训练是改善多发性硬化症患者生命意义和生活质量的有效干预措施。此外，任何旨在改善疾病晚期患者生活质量的心理干预都需要同时关注身体和心理问题。虽然团体希望疗法训练改善了此类患者的生命意义，但对生活质量没有显著影响。因此，在治疗干预过程中关注多发性硬化症的阶段和患者的身体状况，并采取必要的补充干预措施似乎至关重要。
