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J Gen Intern Med. 2023 Jul;38(9):2045-2051. doi: 10.1007/s11606-023-08035-4. Epub 2023 Feb 22.
3
Community engagement and clinical trial diversity: Navigating barriers and co-designing solutions-A report from the "Health Equity through Diversity" seminar series.社区参与和临床试验多样性:克服障碍和共同设计解决方案——来自“通过多样性实现健康公平”研讨会系列的报告。
PLoS One. 2023 Feb 16;18(2):e0281940. doi: 10.1371/journal.pone.0281940. eCollection 2023.
4
Examining participant representation by sex, race, ethnicity and age in United States blood donation and blood transfusion clinical trials.考察美国献血和输血临床试验中参与者的性别、种族、民族和年龄代表性。
Transfus Apher Sci. 2023 Jun;62(3):103653. doi: 10.1016/j.transci.2023.103653. Epub 2023 Feb 10.
5
Racial and ethnic disparities in childhood and young adult acute lymphocytic leukaemia: secondary analyses of eight Children's Oncology Group cohort trials.儿童和青年急性淋巴细胞白血病的种族和民族差异:八个儿童肿瘤学组队列研究的二次分析。
Lancet Haematol. 2023 Feb;10(2):e129-e141. doi: 10.1016/S2352-3026(22)00371-4.
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多元化人群在输血医学研究中的参与。

Involvement of Diverse Populations in Transfusion Medicine Research.

机构信息

American Red Cross, Washington, DC USA.

Transfusion Medicine, Department of Laboratory Medicine, University of California San Francisco, USA.

出版信息

Transfus Med Rev. 2023 Oct;37(4):150766. doi: 10.1016/j.tmrv.2023.150766. Epub 2023 Sep 20.

DOI:10.1016/j.tmrv.2023.150766
PMID:37993382
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11032214/
Abstract

Communities of color and diverse communities (eg, race, socioeconomic status, language, sexual orientation etc.) have not been recruited and enrolled equitably to participate in research studies in transfusion medicine. The exclusion of diverse communities in transfusion research can lead to health disparities lack of access to approved therapeutics and unequal allocation of interventions, resulting in missed opportunities to optimize health for individuals and communities. Involvement of diverse populations in research goes beyond inclusion as research subjects. Strategies should include specific studies on health conditions of importance to diverse communities with stable funding sources and specific funding announcements to develop projects led by diverse researchers, mentorship of diverse researchers, and openness to various ways of communicating research plans. Qualitative approaches and interdisciplinary collaboration should be supported to enhance inclusivity.

摘要

在输血医学研究中,有色人种社区和多元化社区(如种族、社会经济地位、语言、性取向等)并没有被公平地招募和纳入参与研究。在输血研究中排除多元化社区可能导致健康差距、无法获得批准的治疗方法以及干预措施分配不均,从而错失优化个人和社区健康的机会。多元化人群参与研究不仅仅是作为研究对象的包容。策略应包括针对多元化社区重要健康状况的具体研究,具有稳定的资金来源,并专门发布资金通知,以开展由多元化研究人员领导的项目,为多元化研究人员提供指导,并对各种沟通研究计划的方式持开放态度。应支持定性方法和跨学科合作,以增强包容性。