Servicio de Pediatría, Vall d'Hebron Hospital Universitari, Vall d'Hebron Barcelona Hospital Campus, Universitat Autònoma de Barcelona, Barcelona, Spain; CIBER de Enfermedades Raras (CIBERER), Instituto de Salud Carlos III (ISCIII), Madrid, Spain.
Unidad de Apoyo a la Transición. Vall d'Hebron Hospital Universitari, Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain; Grupo de Investigación Multidisciplinar de Enfermería, Vall d'Hebron Research Institute (VHIR), Vall d'Hebron Hospital, Barcelona, Spain.
An Pediatr (Engl Ed). 2023 Dec;99(6):422-430. doi: 10.1016/j.anpede.2023.09.014. Epub 2023 Nov 27.
Up to 15-20% of adolescents have a chronic health problem. Adolescence is a period of particular risk for the development or progression of chronic diseases for both individuals with more prevalent conditions and those affected by rare diseases. The transition from paediatric to adult care begins with preparing and training the paediatric patient, accustomed to supervised care, to assume responsibility for their self-care in an adult care setting. The transition takes place when the young person is transferred to adult care and discharged from paediatric care services. It is only complete when the youth is integrated and functioning competently within the adult care system. Adult care providers play a crucial role in welcoming and integrating young adults. A care transition programme can involve transitions of varying complexity, ranging from those required for common and known diseases such as asthma, whose management is more straightforward, to rare complex disorders requiring highly specialized personnel. The transition requires teamwork with the participation of numerous professionals: paediatricians and adult care physicians, nurses, clinical psychologists, health social workers, the pharmacy team and administrative staff. It is essential to involve adolescents in decision-making and for parents to let them take over gradually. A well-structured transition programme can improve health outcomes, patient experience, the use of health care resources and health care costs.
多达 15-20%的青少年患有慢性健康问题。对于那些患有更常见疾病和罕见疾病的个体来说,青春期是慢性疾病发展或恶化的特殊风险期。从儿科护理向成人护理的过渡始于准备和培训习惯于接受监督护理的儿科患者,以便在成人护理环境中承担自我护理的责任。当年轻人转入成人护理并从儿科护理服务中出院时,过渡就发生了。只有当年轻人在成人护理系统中融入并能够胜任地运作时,过渡才算完成。成人护理提供者在欢迎和整合年轻成年人方面发挥着至关重要的作用。护理过渡计划可能涉及不同复杂程度的过渡,从管理更为简单的常见疾病(如哮喘)所需的过渡到需要高度专业化人员的罕见复杂疾病的过渡。过渡需要团队合作,需要儿科医生和成人护理医生、护士、临床心理学家、卫生社会工作者、药剂师团队和行政人员的参与。让青少年参与决策并让他们逐渐接管是至关重要的。一个结构良好的过渡计划可以改善健康结果、患者体验、医疗资源的使用和医疗保健费用。