Faculty of Rehabilitation Medicine, University of Alberta, Edmonton, Alberta, Canada.
Institute for Reconstructive Sciences in Medicine (iRSM), Misericordia Community Hospital, Edmonton, Alberta, Canada.
PLoS One. 2023 Nov 30;18(11):e0294712. doi: 10.1371/journal.pone.0294712. eCollection 2023.
With the increasing focus on patient-centred care, this study sought to understand priorities considered by patients and healthcare providers from their experience with head and neck cancer treatment, and to compare how patients' priorities compare to healthcare providers' priorities. Group concept mapping was used to actively identify priorities from participants (patients and healthcare providers) in two phases. In phase one, participants brainstormed statements reflecting considerations related to their experience with head and neck cancer treatment. In phase two, statements were sorted based on their similarity in theme and rated in terms of their priority. Multidimensional scaling and cluster analysis were performed to produce multidimensional maps to visualize the findings. Two-hundred fifty statements were generated by participants in the brainstorming phase, finalized to 94 statements that were included in phase two. From the sorting activity, a two-dimensional map with stress value of 0.2213 was generated, and eight clusters were created to encompass all statements. Timely care, education, and person-centred care were the highest rated priorities for patients and healthcare providers. Overall, there was a strong correlation between patient and healthcare providers' ratings (r = 0.80). Our findings support the complexity of the treatment planning process in head and neck cancer, evident by the complex maps and highly interconnected statements related to the experience of treatment. Implications for improving the quality of care delivered and care experience of head and cancer are discussed.
随着人们越来越关注以患者为中心的护理，本研究旨在了解患者和医疗保健提供者从头颈部癌症治疗经验中考虑的优先事项，并比较患者的优先事项与医疗保健提供者的优先事项有何不同。采用群组概念映射法分两个阶段积极从参与者（患者和医疗保健提供者）中确定优先事项。在第一阶段，参与者集思广益，提出反映与头颈部癌症治疗相关的考虑因素的陈述。在第二阶段，根据主题的相似性对陈述进行排序，并根据其优先级进行评分。多维尺度分析和聚类分析用于生成多维图以可视化研究结果。在头脑风暴阶段，参与者生成了 250 条陈述，最终确定了 94 条陈述纳入第二阶段。从分类活动中，生成了一个具有 0.2213 应力值的二维图，并创建了八个集群来包含所有陈述。及时护理、教育和以患者为中心的护理是患者和医疗保健提供者评价最高的优先事项。总体而言，患者和医疗保健提供者的评价之间存在很强的相关性（r=0.80）。我们的研究结果支持头颈部癌症治疗计划过程的复杂性，这一点从与治疗经历相关的复杂地图和高度相互关联的陈述中可以明显看出。讨论了提高头颈部癌症提供的护理质量和护理体验的意义。
