Speech Pathology and Dietetics, Epworth Rehabilitation and Mental Health, Epworth Healthcare, 32 Erin Street, Richmond, VIC, 3121, Australia.
Dysphagia. 2020 Aug;35(4):702-716. doi: 10.1007/s00455-019-10077-y. Epub 2019 Nov 20.
Patients' perceptions on what makes a better care experience for head and neck cancer (HNca) have not been widely sought. Patients' perceptions can play a crucial role in shaping quality care and client involvement. To investigate patients' perspectives on what makes a better care experience while undergoing rehabilitation for oropharyngeal dysphagia secondary to HNca. Qualitative data were collected in the form of semi-structured interviews from eight patients after they had undergone rehabilitation for HNca. The data were thematically analysed by two researchers independently. Six themes, plus subthemes, were identified. These themes were Supportive network is essential; Reassurance from staff professionalism; Access to service; Using own motivation and resilience; Receiving the right information and Ongoing shock and adjustment. Results are discussed in context of the literature and clinical implications and future research are recommended. Collation of patients' perspectives is valuable to increase insight into what makes a better rehabilitative journey for patients with HNca. Rehabilitation that is holistic, specialised and patient-specific is highly valued by patients with HNca.
患者对改善头颈部癌症（HNca）护理体验的看法尚未得到广泛关注。患者的看法在塑造优质护理和客户参与方面起着至关重要的作用。本研究旨在调查患者在接受康复治疗以改善因 HNca 所致的口咽吞咽困难期间，对改善护理体验的看法。研究采用半结构式访谈的形式，从 8 名接受 HNca 康复治疗后的患者中收集定性数据。两名研究人员分别对数据进行主题分析。确定了 6 个主题，加上子主题。这些主题包括：支持网络至关重要；员工专业精神带来的安心；获取服务；利用自身动力和适应力；获得正确的信息；持续的震惊和调整。研究结果结合文献进行了讨论，并提出了临床意义和未来研究的建议。收集患者的观点对于深入了解 HNca 患者康复之旅的改善非常有价值。整体、专业和个体化的康复治疗深受 HNca 患者的重视。
