Interdisciplinary Center of Sleep Medicine, Charité - Universitätsmedizin Berlin, Berlin, Germany.
Grenoble Alpes University, Inserm, U1300, CHU Grenoble Alpes, Grenoble, France.
J Sleep Res. 2024 Aug;33(4):e14125. doi: 10.1111/jsr.14125. Epub 2023 Dec 11.
Obstructive sleep apnea increases morbidity and mortality risks. The most common treatment is continuous positive airway pressure, with nasal mask usage being important, but not always optimal. While most research on treatment adherence focuses on the patient, the bed partner's involvement may be detrimental. Our study aim is to obtain a European-wide picture of the bed partner's attitude and support towards continuous positive airway pressure therapy, including effects on relationship satisfaction and intimacy. The English translation of a German bed partner questionnaire, assessing relationship satisfaction and three major components (general attitude, perceived mask looks, intimacy effects) was distributed within the European Sleep Apnea Database Network and translated in participating countries' local language. Data were collected for 2 years. In total, 10 European countries (13 sleep centres) participated with 1546 questionnaires. Overall, 91% of bed partners had a positive attitude towards continuous positive airway pressure therapy, 86% perceived mask looks not negative, 64% stated no negative intimacy effects. More specifically, 71% mentioned improved sleep quality, 68% supported nightly device usage. For 41% of bed partners, relationship satisfaction increased (no change for 47%). These results were significantly more pronounced in Eastern/Southern Europe compared with Middle Europe, especially regarding intimacy effects. However, increased continuous positive airway pressure therapy length affected attitude negatively. These results provide necessary information to improve treatment strategies by including educational couple-focused approaches. Among others, we revealed that negative intimacy effects are not considered a barrier to continuous positive airway pressure adherence. These results may inspire more research identifying regional gaps with need for treatment adjustments.
阻塞性睡眠呼吸暂停增加发病率和死亡率风险。最常见的治疗方法是持续气道正压通气,使用鼻罩很重要,但并不总是最佳选择。虽然大多数关于治疗依从性的研究都集中在患者身上,但床伴的参与可能是有害的。我们的研究目的是在欧洲范围内了解床伴对持续气道正压通气治疗的态度和支持情况,包括对关系满意度和亲密感的影响。评估关系满意度和三个主要成分(一般态度、感知面罩外观、亲密感影响)的德国床伴问卷的英文翻译在欧洲睡眠呼吸暂停数据库网络中分发,并翻译成参与国家的当地语言。数据收集了 2 年。共有 10 个欧洲国家(13 个睡眠中心)参与,共发放了 1546 份问卷。总体而言,91%的床伴对持续气道正压通气治疗持积极态度,86%认为面罩外观不消极,64%表示无负面亲密感影响。更具体地说,71%的人提到睡眠质量改善,68%支持每晚使用设备。对于 41%的床伴来说,关系满意度提高(47%没有变化)。与中欧相比,东欧/南欧的这些结果更为明显,尤其是在亲密感影响方面。然而,持续气道正压通气治疗时间的增加对态度产生了负面影响。这些结果提供了必要的信息,通过包括教育性夫妻为中心的方法来改善治疗策略。其中,我们发现负面的亲密感影响并不是持续气道正压通气依从性的障碍。这些结果可能会激发更多的研究,以确定需要治疗调整的地区差距。