Ferraris Giulia, Monzani Dario, Coppini Veronica, Conti Lorenzo, Maria Pizzoli Silvia Francesca, Grasso Roberto, Pravettoni Gabriella
Applied Research Division for Cognitive and Psychological Science, IEO, European Institute of Oncology IRCCS, Milan, Italy.
Department of Psychology, Educational Science and Human Movement (SPPEFF), University of Palermo, Palermo, Italy.
Digit Health. 2023 Dec 15;9:20552076231210663. doi: 10.1177/20552076231210663. eCollection 2023 Jan-Dec.
Disparities in cancer care contribute to higher rates of cancer mortality. Online health information would be a resource for cancer patients to obtain knowledge and make health decisions. However, factors that hinder or facilitate online searching behaviours among patients remain unexplored. The current systematic review aims to identify and synthesise evidence of cancer patients' barriers to and facilitators of online health information-seeking behaviours. Electronic databases (PubMed, EMBASE, Scopus) were systematically searched, and a total of 123 full-text studies were reviewed of which 24 met the inclusion criteria. Thematic analysis was performed to identify barriers and facilitators of online health information-seeking behaviours. Seven key themes were identified: (1) socio-demographic characteristics (age, gender, education, income, ethnicity and language), (2) psychosocial aspects (psychological wellbeing, need for a face to face contact, motivation, support), (3) accessibility (Internet access, residence), (4) quality and quantity of information (amount, reliability), (5) cancer stage and symptoms (time since diagnosis, experiencing symptoms), (6) aspects related to healthcare professionals (relationship with the patients and opinions on online health information) and (7) digital literacy (computer skills and literacy). Findings underscore the significance of recognising the multifaceted nature of barriers and facilitators affecting cancer patients' online health information-seeking behaviours. A strong link between these factors and cancer patients' ability to make informed decisions and cope effectively with their diagnosis emerged. Consequently, addressing these barriers and leveraging the identified facilitators could lead to improvements in patient-centred care, ultimately contributing to better healthcare services and informed decision-making for cancer patients. Future research should prioritise exploring strategies for enhancing cancer care accessibility across all stakeholders involved.
CRD42023408091.
癌症护理方面的差异导致癌症死亡率更高。在线健康信息本可成为癌症患者获取知识并做出健康决策的一种资源。然而，阻碍或促进患者在线搜索行为的因素仍未得到探索。当前的系统评价旨在识别并综合癌症患者在线寻求健康信息行为的障碍和促进因素的证据。对电子数据库（PubMed、EMBASE、Scopus）进行了系统检索，共审查了123篇全文研究，其中24篇符合纳入标准。进行了主题分析以确定在线寻求健康信息行为的障碍和促进因素。确定了七个关键主题：（1）社会人口学特征（年龄、性别、教育程度、收入、种族和语言），（2）心理社会方面（心理健康、面对面接触的需求、动机、支持），（3）可及性（互联网接入、居住地点），（4）信息的质量和数量（数量、可靠性），（5）癌症分期和症状（确诊时间、出现症状），（6）与医疗保健专业人员相关的方面（与患者的关系以及对在线健康信息的看法）和（7）数字素养（计算机技能和读写能力）。研究结果强调了认识到影响癌症患者在线寻求健康信息行为的障碍和促进因素的多面性的重要性。这些因素与癌症患者做出明智决策并有效应对其诊断的能力之间存在紧密联系。因此，解决这些障碍并利用已确定的促进因素可能会改善以患者为中心的护理，最终为癌症患者带来更好的医疗服务和明智的决策。未来的研究应优先探索增强所有相关利益者的癌症护理可及性的策略。
CRD42023408091
