Department of Neurology, The Third Hospital of Nanchang, Nanchang People's Hospital, Nanchang, Jiangxi Province, China.
Department of Nursing, Jiangxi Provincial People's Hospital, The First Affiliated Hospital of Nanchang Medical College, Nanchang, Jiangxi, China.
Medicine (Baltimore). 2023 Dec 15;102(50):e36443. doi: 10.1097/MD.0000000000036443.
We found that activation and family adaptation on the self-perceived burden of breast cancer patients with an implanted venous access port (IVAP), and to analyze the correlations among these scores. A total of 256 patients completed a general data questionnaire, the Patient Activation Measure (PAM), the Family adaptation and Cohesion Scale II-Chinese version (FACES-II-CV), and the Self-perceived Burden Scale (SPBS). The total scores for activation, family adaptation, and self-perceived burden were 63.31 ± 18.92, 42.72 ± 7.937, and 28.55 ± 7.89, respectively. We analyzed activation and family adaptation were associated with self-perceived burden (P < .05) the patients' self-perceived burden main factors is included Main caregiver, disease stage, complications, Type of health insurance, activation, and family adaptation. The activation, family adaptation, and self-perceived burden of breast cancer patients with an IVAP are closely related, which suggests that clinical workers should consider the patient family to formulate an intervention plan to improve patient activation, and thus reduce the self-perceived burden. For example, hospitals regularly conduct breast cancer health education activities, or invite psychological counselors to provide services to patients.
我们发现植入式静脉输液港(IVAP)乳腺癌患者的自我感知负担的激活和家庭适应性,并分析这些评分之间的相关性。共有 256 名患者完成了一般数据问卷、患者激活量表(PAM)、家庭适应性和凝聚力量表第二版中文版(FACES-II-CV)和自我感知负担量表(SPBS)。激活、家庭适应性和自我感知负担的总分分别为 63.31±18.92、42.72±7.937 和 28.55±7.89。我们分析了激活和家庭适应性与自我感知负担相关(P<.05),患者自我感知负担的主要因素包括主要照顾者、疾病阶段、并发症、健康保险类型、激活和家庭适应性。植入式静脉输液港乳腺癌患者的激活、家庭适应性和自我感知负担密切相关,这表明临床工作者应考虑患者家庭制定干预计划,以提高患者的激活程度,从而降低自我感知负担。例如,医院定期开展乳腺癌健康教育活动,或聘请心理咨询师为患者提供服务。