College of Art and Design, Birmingham City University, Birmingham, UK
Institute of Geography and the Lived Environment, School of GeoSciences, University of Edinburgh, Edinburgh, UK.
Med Humanit. 2024 Feb 22;50(1):41-51. doi: 10.1136/medhum-2023-012796.
Scoliosis is an abnormal lateral curvature of the spine with the large majority of cases classed as idiopathic, meaning there is no known cause. Typically, most cases occur in children and young people affecting approximately three per cent of the adult populace with five out of six cases being female. The pilot research study used arts and humanities methods to measure the impact of adolescent idiopathic scoliosis (AIS) on well-being and body perception. The research aimed to contribute to a better understanding of alternative treatments towards improving quality of life in young women diagnosed with AIS. In particular, concentrating on two highlighted priorities from the Scoliosis Priority Setting Partnership: (1) How is quality of life affected by scoliosis and its treatment? How can we measure this in ways that are meaningful to patients? (2) How are the psychological impacts (including on body image) of diagnosis and treatment best managed.Using established medical techniques, art-based workshops, and focus groups with postoperative participants with AIS and their families we gathered both quantitative and qualitative data. The workshops explored the aesthetics of imperfection through material investigations that focus on the body as both an object and how it is experienced using the metaphor of tree images. Drawing parallels between the growth patterns of trees that, for complex and often unknown reasons, have grown unexpectedly we explored questions around ideological notions of perfect growth through art-making in a non-clinical setting. Uniquely, the pilot project sought to draw on insights from four key disciplines (art, medicine, psychology and human geography), thinking across boundaries to evoke different ways of knowing and understanding the complexities of body perception through image-making.
脊柱侧凸是一种异常的脊柱侧向弯曲,大多数病例属于特发性,即没有已知的原因。通常,大多数病例发生在儿童和年轻人中,大约有 3%的成年人受到影响,其中 6 例中有 5 例是女性。该试点研究采用艺术和人文学科的方法来衡量青少年特发性脊柱侧凸(AIS)对幸福感和身体感知的影响。该研究旨在帮助更好地理解替代治疗方法,以提高被诊断为 AIS 的年轻女性的生活质量。特别是,该研究集中于脊柱侧凸优先事项设定伙伴关系中的两个重点:(1)脊柱侧凸及其治疗如何影响生活质量?我们如何以对患者有意义的方式来衡量这一点?(2)如何最好地管理诊断和治疗的心理影响(包括对身体形象的影响)。通过使用既定的医疗技术、基于艺术的工作坊和 AIS 术后参与者及其家人的焦点小组,我们收集了定量和定性数据。这些工作坊通过关注身体既是物体又是如何通过树木图像的隐喻来体验的材料研究,探讨了不完美的美学。通过艺术创作在非临床环境中,我们比较了树木的生长模式,这些树木由于复杂且通常未知的原因而意外地生长,从而探讨了关于理想生长的思想观念的问题。该试点项目的独特之处在于寻求借鉴四个关键学科(艺术、医学、心理学和人类地理学)的见解,跨越界限思考,通过图像制作唤起不同的认知和理解身体感知复杂性的方式。