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年轻人从儿童服务向成人服务过渡:对谁有效,在什么情况下有效 - 一个真实世界综合研究的方案。

Transition of young people from children's into adults' services: what works for whom and in what circumstances - protocol for a realist synthesis.

机构信息

School of Health Sciences, University of Surrey, Guildford, UK

Centre for Outcomes and Experience Research in Children's Health, Illness and Disability, Great Ormond Street Hospital, London, UK.

出版信息

BMJ Open. 2024 Jan 4;14(1):e076649. doi: 10.1136/bmjopen-2023-076649.

Abstract

INTRODUCTION

The process of transitioning young people from children's or adolescents' health services into adults' services is a crucial time in the lives and health of young people and has been reported to be disjointed rather than a process of preparation in which they are involved. Such transitions not only fail to meet the needs of young people and families at this time of significant change, but they may also result in a deterioration in health, or disengagement with services, which can have deleterious long-term consequences. Despite the wealth of literature on this topic, there has yet to be a focus on what works for whom, in what circumstances, how and why, in relation to young people transitioning from children's into adults' services, which this realist synthesis aims to address.

METHODS AND ANALYSIS

This realist synthesis will be undertaken in six stages: (1) the scope of the review will be defined; (2) initial programme theories (IPTs) developed; (3) evidence searched; (4) selection and appraisal; (5) data extraction and synthesis; and (6) finally, refine/confirm programme theory. A theory-driven, iterative approach using the 'On Your Own Feet Ahead' theoretical framework, will be combined with an evidence search including a review of national transition policy documents, supplemented by citation tracking, snowballing and stakeholder feedback to develop IPTs. Searches of EMBASE, EMCARE, Medline, CINAHL, Cochrane Library, Web of Science, Scopus, APA PsycINFO and AMED will be conducted from 2014 to present, supplemented with grey literature, free-text searching (title, abstract and keywords) and citation tracking. Data selection will be based on relevance and rigour and extracted and synthesised iteratively with the aim of identifying and exploring causal links between contexts, mechanisms and outcomes. Results will be reported according to the Realist And Meta-narrative Evidence Syntheses: Evolving Standards Quality and Publication Standards.

ETHICS AND DISSEMINATION

This realist synthesis forms part of the National Transition Evaluation Study, which has received ethical and regulatory approval (IRAS ID: 313576). Results will be disseminated through peer-review publication, conference presentations and working with healthcare organisations, stakeholder groups and charities.

TRIAL REGISTRATION NUMBER

NCT05867745.

PROSPERO REGISTRATION NUMBER

CRD42023388985.

摘要

介绍

将年轻人从儿童或青少年健康服务过渡到成人服务是他们生活和健康的关键时期,据报道,这一过程是不连贯的,而不是一个让他们参与的准备过程。这种过渡不仅不能满足年轻人和家庭在这个重大变化时期的需求,而且还可能导致健康状况恶化或服务脱节,从而产生长期的有害后果。尽管关于这个主题的文献很多,但迄今为止,还没有关注在什么情况下、如何以及为什么对于从儿童服务过渡到成人服务的年轻人来说,什么是有效的,这就是本真实主义综合研究的目的。

方法和分析

本真实主义综合研究将分六个阶段进行:(1)定义审查范围;(2)制定初始方案理论(IPT);(3)搜索证据;(4)选择和评估;(5)数据提取和综合;(6)最后,完善/确认方案理论。使用“On Your Own Feet Ahead”理论框架的理论驱动、迭代方法,将与证据搜索相结合,包括对国家过渡政策文件的审查,辅以引文追踪、滚雪球和利益相关者反馈,以制定 IPT。将从 2014 年至今,在 EMBASE、EMCARE、Medline、CINAHL、Cochrane 图书馆、Web of Science、Scopus、APA PsycINFO 和 AMED 进行搜索,并辅以灰色文献、自由文本搜索(标题、摘要和关键词)和引文追踪。数据选择将基于相关性和严谨性,并进行迭代提取和综合,旨在确定和探索背景、机制和结果之间的因果关系。结果将根据真实主义和元叙述证据综合:不断发展的标准质量和出版标准进行报告。

伦理和传播

本真实主义综合研究是国家过渡评估研究的一部分,该研究已获得伦理和监管批准(IRAS ID:313576)。结果将通过同行评审出版物、会议演讲以及与医疗保健组织、利益相关者团体和慈善机构合作来传播。

试验注册编号

NCT05867745。

PROSPERO 注册号:CRD42023388985。

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