School of Pharmacy, University of East Anglia, Norwich, Norfolk, UK
School of Health Sciences, University of East Anglia, Norwich, UK.
BMJ Open. 2020 Sep 3;10(9):e037636. doi: 10.1136/bmjopen-2020-037636.
Self-management support can enable and empower people living with and beyond cancer to take an active role in managing long-term consequences of cancer treatment. Healthcare professionals are key to promoting patients to self-manage, however, they do not routinely engage in these discussions. This review aims to understand what works for whom and in what circumstances in relation to practitioners engaging with supporting people living with and beyond cancer to self-manage long-term consequences of systemic anticancer treatment.
We will follow five steps for undertaking the realist review: (1) define the review scope, (2) develop initial programme theories, (3) evidence search, (4) selection and appraisal and (5) data extraction and synthesis. We will combine an informal literature search with a theory-based approach, using the theoretical domains framework, and stakeholder feedback to develop initial programme theories. We will search Medline, EMBASE, CINAHL, Scopus, PsycINFO, ERIC and AMED databases to September 2019, and supplement this with citation tracking, grey literature and practitioner surveys. Data selection will be based on relevance and rigour. Data will be extracted and synthesised iteratively, and causal links between contexts, mechanism and outcomes illuminated in the process. The results will be reported according to the Realist And Meta-narrative Evidence Syntheses: Evolving Standards quality and publication standards.
We have received ethical approval through the Research Ethics Committee, Faculty of Medicine and Health Sciences, University of East Anglia (ref 2 01 819-124). We will disseminate to the research community through conference presentations and a peer-reviewed journal article. We will work with healthcare organisations, cancer charities and patients to agree a strategy for disseminating to these groups.
CRD42019120910.
自我管理支持可以使癌症患者及其康复者能够积极参与管理癌症治疗的长期后果。医疗保健专业人员是促进患者自我管理的关键，但他们通常不进行这些讨论。本综述旨在了解从业者在何种情况下与癌症患者及其康复者合作，以自我管理癌症系统治疗的长期后果方面，哪些方法对哪些人有效。
我们将遵循开展真实审查的五个步骤：（1）定义审查范围，（2）制定初始方案理论，（3）证据搜索，（4）选择和评估，（5）数据提取和综合。我们将结合非正式文献搜索和基于理论的方法，使用理论领域框架和利益相关者反馈来制定初始方案理论。我们将搜索 Medline、EMBASE、CINAHL、Scopus、PsycINFO、ERIC 和 AMED 数据库，截至 2019 年 9 月，并通过引文跟踪、灰色文献和从业者调查对此进行补充。数据选择将基于相关性和严谨性。数据将进行迭代提取和综合，并在这个过程中阐明背景、机制和结果之间的因果关系。结果将根据真实主义和元叙述证据综合：不断发展的标准质量和出版标准进行报告。
我们已通过东英吉利大学医学与健康科学学院研究伦理委员会的批准（参考号 2 01 819-124）。我们将通过会议演讲和同行评议的期刊文章向研究界传播。我们将与医疗保健组织、癌症慈善机构和患者合作，制定向这些群体传播的策略。
PROSPERO 注册号：CRD42019120910。
