Faculty of Medicine, Department of Pediatrics, Aksaray University, Aksaray, Turkey.
Department of Social Pediatrics, Institute of Child Health, Hacettepe University, Ankara, Turkey.
Ital J Pediatr. 2024 Jan 18;50(1):8. doi: 10.1186/s13052-023-01570-0.
Breath holding spells (BHS) are an important non-epileptic condition that is common in childhood and causes concern to families. YouTube is a powerful social media tool for accessing diseases and information such as BHS in child health. The aim of the study was to measure of the quality and reliability levels of the videos published in English on BHS uploaded on YouTube.
The key words "infant", "cry", "breath holding spells", holding spells" and "breath spells" were searched on the YouTube on November 14, 2022, in this study. Along with the general features of the videos, their quality and reliability were evaluated according to the global quality score (GQS), mDISCERN score.
Fifty-five videos were evaluated. The mDISCERN and GQS scores of the videos in the useful group were higher than those in the misleading group (p < 0.001, p < 0.001). In the useful group, 87.5% of academic institutions and 93.3% of medical doctors (MDs) uploaded high-score GQS videos, while this rate was 16.7% in independent users (p = 0.005). The positive correlation was found between mDISCERN and GQS scores (p < 0.001).
The majority of YouTube videos on BHS contained useful information with sufficient quality. Professional associations such as universities and academic institutes need to produce better quality videos to provide families/users with more accurate and up-to-date information about BHS. We emphasize that YouTube should analyse videos published in the field of health, especially in the field of pediatrics, such as BHS, with committees consisting of expert health professionals, and publish them after evaluation. YouTube should consider collaborating with professional pediatrics health organizations such as American Academy of Pediatrics (AAP), academic institutes and universities in the field of BHS to produce high-quality videos.
屏气发作（BHS）是一种常见于儿童的重要非癫痫性疾病，会引起家庭的关注。YouTube 是一个强大的社交媒体工具，可用于获取儿童健康领域的疾病和信息，例如 BHS。本研究的目的是衡量在 YouTube 上发布的关于 BHS 的英文视频的质量和可靠性水平。
在本研究中，于 2022 年 11 月 14 日在 YouTube 上搜索了“婴儿”、“哭泣”、“屏气发作”、“发作”和“屏气”等关键词。除了视频的一般特征外，还根据全球质量评分（GQS）和 mDISCERN 评分评估了它们的质量和可靠性。
共评估了 55 个视频。有用组的 mDISCERN 和 GQS 评分高于误导组（p<0.001，p<0.001）。在有用组中，87.5%的学术机构和 93.3%的医生（MD）上传了 GQS 得分较高的视频，而独立用户的这一比例为 16.7%（p=0.005）。mDISCERN 和 GQS 评分之间存在正相关关系（p<0.001）。
YouTube 上关于 BHS 的大多数视频都包含有用的信息，并且质量足够高。大学和学术机构等专业协会需要制作更高质量的视频，为家庭/用户提供有关 BHS 的更准确和最新信息。我们强调，YouTube 应该分析在健康领域（尤其是儿科领域）发布的视频，例如 BHS，由专家健康专业人员组成的委员会，并在评估后发布。YouTube 应该考虑与美国儿科学会（AAP）等专业儿科健康组织、学术机构和 BHS 领域的大学合作，制作高质量的视频。
