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探讨慢性病患儿父母的韧性和倦怠。

Examining resilience and burnout in parents of children with chronic disease.

机构信息

Health Sciences Faculty, Kafkas University, Kars, Turkey.

Health Sciences Faculty, Kafkas University, Kars, Turkey.

出版信息

J Pediatr Nurs. 2024 Mar-Apr;75:e176-e183. doi: 10.1016/j.pedn.2024.01.011. Epub 2024 Jan 19.

Abstract

AIM

The study determines the relationship between resilience and burnout in parents of children with chronic diseases and the influencing factors.

METHOD

The study was conducted with a descriptive design. The study population consisted of the parents of children with any chronic illness who applied to the pediatric outpatient clinics of a state hospital located in a province in the northeast of Turkey. The study sample consisted of 207 parents who came to the hospital between October 2020 and June 2022, who met the criteria, and agreed to participate. "Descriptive Information Form," "Family Resilience Scale (FRS)," and "Burnout Inventory (BI)" were employed to collect data. The data were analyzed using the SPSS for Windows 22 package program.

RESULTS

37.2% of the parents participating in the study were in the age group of 30-39 years, 52.2% were female, 93.2% had no other children with chronic diseases, 20.3% were diagnosed with asthma, and the duration of the diagnosis was between 1 and 4 years in 44.4%. The participants scored 130.64 ± 25.73 points in the Family Resilience Scale and 36.16 ± 7.78 points in the overall Burnout Inventory.

CONCLUSION

It was determined that parents' resilience was high and their burnout was moderate. Burnout decreases as resilience increases in parents of children with chronic diseases.

PRACTICE IMPLICATIONS

To strengthen family resilience and reduce parental burnout, nurses should support and provide holistic care to parents with chronically ill children.

摘要

目的

本研究旨在确定慢性病患儿父母的韧性与倦怠之间的关系及其影响因素。

方法

本研究采用描述性设计。研究对象为土耳其东北部某省一家州立医院儿科门诊就诊的任何慢性疾病患儿的家长。研究样本由 207 名符合条件并同意参与的家长组成,他们于 2020 年 10 月至 2022 年 6 月期间到医院就诊。采用“一般资料表”、“家庭韧性量表(FRS)”和“倦怠量表(BI)”收集数据。使用 SPSS for Windows 22 程序包对数据进行分析。

结果

参与研究的家长中,37.2%年龄在 30-39 岁之间,52.2%为女性,93.2%家中没有其他患有慢性病的孩子,20.3%患有哮喘,诊断时间在 1-4 年的占 44.4%。参与者在家庭韧性量表中得分为 130.64±25.73 分,在整体倦怠量表中得分为 36.16±7.78 分。

结论

研究发现慢性病患儿父母的韧性水平较高,倦怠程度处于中等水平。父母的韧性水平越高,倦怠程度越低。

实践意义

为增强家庭韧性,减少父母倦怠,护士应为慢性病患儿的父母提供支持和全面护理。

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