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闭锁综合征患者的诊疗方法及其沟通能力的最新进展

Update on How to Approach a Patient with Locked-In Syndrome and Their Communication Ability.

作者信息

Voity Kaitlyn, Lopez Tara, Chan Jessie P, Greenwald Brian D

机构信息

Hackensack Meridian School of Medicine, Nutley, NJ 07110, USA.

JFK Johnson Rehabilitation Institute, Edison, NJ 08820, USA.

出版信息

Brain Sci. 2024 Jan 17;14(1):92. doi: 10.3390/brainsci14010092.

DOI:10.3390/brainsci14010092
PMID:38248307
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10813368/
Abstract

Locked-in syndrome (LIS) is a rare and challenging condition that results in tetraplegia and cranial nerve paralysis while maintaining consciousness and variable cognitive function. Once acute management is completed, it is important to work with the patient on developing a plan to maintain and improve their quality of life (QOL). A key component towards increasing or maintaining QOL within this population involves the establishment of a functional communication system. Evaluating cognition in patients with LIS is vital for evaluating patients' communication needs along with physical rehabilitation to maximize their QOL. In the past decade or so, there has been an increase in research surrounding brain-computer interfaces to improve communication abilities for paralyzed patients. This article provides an update on the available technology and the protocol for finding the best way for patients with this condition to communicate. This article aims to increase knowledge of how to enhance and manage communication among LIS patients.

摘要

闭锁综合征(LIS)是一种罕见且具有挑战性的病症,会导致四肢瘫痪和颅神经麻痹,同时保持意识和不同程度的认知功能。一旦完成急性处理,与患者共同制定一个维持和改善其生活质量(QOL)的计划就很重要。在这一群体中提高或维持生活质量的一个关键因素是建立一个功能性的沟通系统。评估闭锁综合征患者的认知对于评估患者的沟通需求以及进行身体康复以最大限度提高其生活质量至关重要。在过去十年左右的时间里,围绕脑机接口以改善瘫痪患者沟通能力的研究有所增加。本文提供了关于现有技术以及为患有这种病症的患者找到最佳沟通方式的方案的最新信息。本文旨在增加对如何增强和管理闭锁综合征患者沟通的认识。

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Blink-To-Live eye-based communication system for users with speech impairments.眨眼式眼部交流系统,供言语障碍用户使用。
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Burden of informal caregivers of people without natural speech: a mixed-methods intervention study.无自然语言能力人群的非正式照护者负担:一项混合方法干预研究。
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