Tamplain Priscila M, Fears Nicholas E, Robinson Promise, Chatterjee Riya, Lichtenberg Gavin, Miller Haylie L
Department of Kinesiology, University of Texas at Arlington, Arlington, TX, USA.
School of Kinesiology, University of Michigan, Ann Arbor, MI, USA.
J Mot Learn Dev. 2023 Dec;11(3):541-554. doi: 10.1123/jmld.2023-0008. Epub 2023 Aug 24.
Little is known about adults' experiences with developmental coordination disorder (DCD; sometimes also referred to as dyspraxia). Social media is an accessible opportunity for those who identify as dyspraxic or as having DCD to provide valuable insight into the lifespan impact of this condition on functional ability, participation, compensatory strategies, and well-being. We used the Twitter research application programming interface to identify users who self-identified with the keywords Developmental Coordination Disorder, #DCD, #dyspraxic (or # dyspraxia), or clumsy in their profile descriptions between October 10 and November 10, 2021. During that period, 818 tweets were harvested with 524 remaining after removing duplicates (e.g., multiple promotions of a single resource) and unrelated tweets. They were labeled according to motor differences (); functional impact (); or other related topics (, and ). The DCD/dyspraxic community has clearly identified a lifelong impact of motor differences across multiple contexts. DCD/dyspraxic Twitter users shared compensatory strategies that could help others, and offered insight into their experience of co-occurring conditions and cognitive/emotional sequelae of motor challenges.
关于成年人患发育性协调障碍（DCD，有时也称为发育性运动障碍）的经历，我们所知甚少。对于那些自认为患有发育性运动障碍或DCD的人来说，社交媒体是一个可利用的契机，能让他们深入了解这种疾病对功能能力、参与度、代偿策略和幸福感的终生影响。我们利用推特研究应用程序编程接口，找出在2021年10月10日至11月10日期间，在其个人资料描述中使用“发育性协调障碍”“#DCD”“#发育性运动障碍（或#运动障碍）”或“笨拙”等关键词进行自我认定的用户。在此期间，共收集到818条推文，去除重复推文（如对单一资源的多次推广）和无关推文后，还剩下524条。这些推文根据运动差异、功能影响或其他相关主题进行了分类。DCD/发育性运动障碍群体明确指出了运动差异在多种情况下的终生影响。使用推特的DCD/发育性运动障碍用户分享了有助于他人的代偿策略，并深入介绍了他们在并发疾病以及运动挑战的认知/情感后遗症方面的经历。
