Albilali Abdulrazaq, Al-Hashel Jasem, Elchami Ziad, Al Rukn Suhail, Al Madani Abu Baker, AlTunaiji Muna, Al Ali Jalal, Fathy Mohamed, Joury Jean
Neurology Unit, Department of Medicine, College of Medicine, King Saud University, Riyadh, Saudi Arabia.
Department of Neurology, Ibn Sina Hospital, Department of Medicine, Faculty of Medicine, Kuwait University, Kuwait City, Kuwait.
Pain Ther. 2024 Apr;13(2):201-210. doi: 10.1007/s40122-024-00576-8. Epub 2024 Jan 27.
The scale of migraine and its impact on the lives of patients in the Gulf Cooperation Council (GCC) countries may be underestimated by healthcare professionals and the public and unmet needs in the provision of migraine medical care may exist. This article reports the key outcomes from a meeting of migraine specialists and their patients organised by the Emirates Neurology Society to learn more about the patient diagnosis and treatment journey and the extent to which migraine affects daily life. Patient stories indicate that the burden of migraine is underestimated, migraine is not generally recognised as a disease, delayed and incorrect diagnoses are common, and that achieving symptom control is often more a question of good luck rather than good management. Disease awareness campaigns are recommended to elevate societal understanding of migraine and reduce stigma toward patients affected by migraine. Recommendations for an improved healthcare system experience for patients affected by migraine include education initiatives targeting patients and physicians as well as initiatives to address gaps in the diagnosis and treatment of migraine.
在海湾合作委员会(GCC)国家,偏头痛的规模及其对患者生活的影响可能被医疗保健专业人员和公众低估,并且在提供偏头痛医疗护理方面可能存在未满足的需求。本文报告了由阿联酋神经学会组织的偏头痛专家及其患者会议的主要成果,以更多地了解患者的诊断和治疗过程以及偏头痛对日常生活的影响程度。患者的故事表明,偏头痛的负担被低估,偏头痛通常不被视为一种疾病,延迟诊断和错误诊断很常见,而且实现症状控制往往更多是靠运气而非良好的管理。建议开展疾病宣传活动,以提高社会对偏头痛的认识,并减少对偏头痛患者的污名化。针对偏头痛患者改善医疗系统体验的建议包括针对患者和医生的教育举措,以及解决偏头痛诊断和治疗差距的举措。