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物理治疗远程康复计划对青少年特发性关节炎患儿护理质量的影响。

The Impact of a Physiotherapy Tele-Rehabilitation Program on the Quality of Care for Children with Juvenile Idiopathic Arthritis.

作者信息

Stavrakidou Maria, Trachana Maria, Koutsonikoli Artemis, Spanidou Kyriaki, Hristara-Papadopoulou Alexandra

机构信息

Asklepeio Physiotherapy Clinic, Thessaloniki, Greece.

First Department of Paediatrics, Paediatric Immunology and Rheumatology Referral Centre, Aristotle University of Thessaloniki, Hippokration Hospital, Thessaloniki, Greece.

出版信息

Mediterr J Rheumatol. 2023 Aug 31;34(4):443-453. doi: 10.31138/mjr.310823.tio. eCollection 2023 Dec.

Abstract

OBJECTIVES

To investigate the applicability and impact of a physiotherapy tele-rehabilitation program (TRP) on children with Juvenile Idiopathic Arthritis (JIA) and their families.

METHODS

Thirty JIA patients, applying an individualized home-exercise program (HEP), were randomly divided in the tele-rehabilitation (TRG, n=15) and control group (CG, n=15). Each TRG patient participated in a 30-minute tele-session, under a paediatric physiotherapist's supervision, twice a week, for 12 weeks. Before and after the TRP (T1 and T2, respectively), all participants and a parent/guardian completed the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) questionnaire and a questionnaire regarding the HEP implementation and compliance. Residual disease was estimated at T1 and T2. At T2, TRG patients/parents completed a questionnaire evaluating the TRP. One month after T2, a reassessment of compliance with the HEP was performed.

RESULTS

The patients' median age was 12.8 (8-16) years. At T2, the TRG patients performed the HEP significantly more frequently (p=0.023), for a longer time (p=0.034) and with less urging (p=0.004), compared to T1. Moreover, they exhibited significantly increased compliance with HEP (p=0.001), better functionality (p=0.008), better quality of life (p=0.007) and less pain (p=0.017). The CG patients showed no significant changes. Residual disease improved in both groups (TRG:p=0.002, CG:p=0.018), but more in the TRG (p=0.045). TRP's applicability and total benefit were rated as excellent by patients/parents. Finally, one month after T2, compliance with the HEP was still greater than at T1(p=0.001).

CONCLUSION

An interactive physiotherapy TRP can be implemented effectively for JIA patients, providing an additional tool for their rehabilitation.

摘要

目的

探讨物理治疗远程康复计划(TRP)对幼年特发性关节炎(JIA)患儿及其家庭的适用性和影响。

方法

30例应用个体化家庭锻炼计划(HEP)的JIA患者被随机分为远程康复组(TRG,n = 15)和对照组(CG,n = 15)。每位TRG患者在儿科物理治疗师的监督下,每周参加两次30分钟的远程治疗课程,共12周。在TRP之前和之后(分别为T1和T2),所有参与者以及一名家长/监护人完成了幼年关节炎多维评估报告(JAMAR)问卷以及一份关于HEP实施和依从性的问卷。在T1和T2时评估残留疾病。在T2时,TRG患者/家长完成了一份评估TRP的问卷。在T2后一个月重新评估HEP的依从性。

结果

患者的中位年龄为12.8(8 - 16)岁。与T1相比,在T2时,TRG患者更频繁地进行HEP(p = 0.023),时间更长(p = 0.034)且催促更少(p = 0.004)。此外,他们对HEP的依从性显著提高(p = 0.001),功能更好(p = 0.008),生活质量更高(p = 0.007)且疼痛更少(p = 0.017)。CG患者无显著变化。两组的残留疾病均有所改善(TRG:p = 0.002,CG:p = 0.018),但TRG组改善更多(p = 0.045)。患者/家长对TRP的适用性和总体益处评价为优秀。最后,在T2后一个月,对HEP的依从性仍高于T1(p = 0.001)。

结论

交互式物理治疗TRP可有效地应用于JIA患者,为其康复提供了一种额外的工具。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/20e2/10815514/3a8749562b01/MJR-34-4-443-g001.jpg

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