Suppr超能文献

《青少年关节炎多维评估报告》(JAMAR)的法译本。

The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

机构信息

Université Paris-Descartes, Institut IMAGINE, Centre de référence national pour les Rhumatismes inflammatoires et les maladies Auto-Immunes Systémiques rares de l'Enfant (RAISE), Unité d'Immunologie, Hématologie et Rhumatologie Pediatrique, Hôpital Necker-Enfants Malades, Assistance Publique Hôpitaux de Paris, 149 Rue De Sevres, 75015, Paris, France.

Unité Romande d'Immuno-Rhumatologie Pediatrique, CHUV, University of Lausanne, Lausanne, Switzerland.

出版信息

Rheumatol Int. 2018 Apr;38(Suppl 1):195-201. doi: 10.1007/s00296-018-3951-2. Epub 2018 Apr 7.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the French language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations and construct validity (convergent and discriminant validity). A total of 100 JIA patients (23% systemic, 45% oligoarticular, 20% RF negative polyarthritis, 12% other categories) and 122 healthy children, were enrolled at the paediatric rheumatology centre of the Necker Children's Hospital in Paris. Notably, none of the enrolled JIA patients is affected with psoriatic arthritis. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the French version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

摘要

《幼年特发性关节炎多维评估报告》(JAMAR)是一种新的父母/患者报告的结局测量工具,能够全面评估幼年特发性关节炎(JIA)患儿的疾病状况。我们报告了法语版 JAMAR 的跨文化适应性和验证结果。我们在 10 名 JIA 患儿及其父母中测试了问卷的阅读理解能力。每个参与中心都被要求收集 100 名连续 JIA 患者或 6 个月内所有连续就诊患者的人口统计学、临床数据和 JAMAR,并向 100 名健康儿童及其父母发放 JAMAR。统计验证阶段探讨了 JAMAR 的描述性统计和心理计量学问题:三个李克特假设、地板/天花板效应、内部一致性、克朗巴赫 α、量表间相关性和构念效度(收敛和区分效度)。共有 100 名 JIA 患者(23%全身型、45%少关节型、20% RF 阴性多关节型、12%其他类型)和 122 名健康儿童在巴黎 Necker 儿童医院儿科风湿病中心接受了登记。值得注意的是,登记的 JIA 患者中没有银屑病关节炎患者。JAMAR 的各个组成部分很好地区分了健康受试者和 JIA 患者。所有 JAMAR 组成部分均显示出良好的心理计量学性能。总之,法语版 JAMAR 是评估 JIA 儿童的有效工具,适用于常规临床实践和临床研究。

相似文献

本文引用的文献

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验