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《青少年关节炎多维评估报告》(JAMAR)泰文版。

The Thai version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR).

机构信息

Rheumatology Division, Pediatric Department, Faculty of Medicine Ramathibodi Hospital, Mahidol University, 270 Rama VI road, Bangkok, 10400, Thailand.

Clinica Pediatrica e Reumatologia, Paediatric Rheumatology International Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147, Genoa, Italy.

出版信息

Rheumatol Int. 2018 Apr;38(Suppl 1):387-393. doi: 10.1007/s00296-018-3977-5. Epub 2018 Apr 7.

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Thai language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 104 JIA patients (45.2% systemic JIA, 10.6% oligoarticular, 9.6% RF negative polyarthritis, 34.6% other categories) and 102 healthy children, were enrolled in one paediatric rheumatology centre. Notably, none of the enrolled JIA patients is affected with psoriatic arthritis or undifferentiated arthritis. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Thai version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

摘要

《幼年特发性关节炎多维评估报告》(JAMAR)是一种新的家长/患者报告结局测量工具,能够全面评估儿童幼年特发性关节炎(JIA)的疾病状况。我们报告了 JAMAR 家长版和患者版在泰语中的跨文化适应性和验证结果。我们在 10 名 JIA 家长和患者中测试了问卷的阅读理解能力。每个参与中心被要求收集人口统计学、临床数据和 JAMAR,并在 100 名连续 JIA 患者或 6 个月内所有连续就诊的患者中进行,还要求 100 名健康儿童及其家长填写 JAMAR。统计验证阶段探讨了 JAMAR 的描述性统计和心理计量学问题:三个李克特假设、地板/天花板效应、内部一致性、克朗巴赫 α、量表间相关性、测试-重测信度和结构效度(收敛和区分效度)。共有 104 名 JIA 患者(45.2%全身型 JIA、10.6%少关节型、9.6% RF 阴性多关节型、34.6%其他类型)和 102 名健康儿童被纳入一个儿科风湿病中心。值得注意的是,纳入的 JIA 患者中均未患有银屑病关节炎或未分化关节炎。JAMAR 各组成部分能够很好地区分健康受试者和 JIA 患者。所有 JAMAR 组成部分均表现出令人满意的心理计量学性能。总之,JAMAR 的泰语版本是评估 JIA 儿童的有效工具,适用于常规临床实践和临床研究。

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