Department of Physiotherapy, School of Primary and Allied Health Care, Monash University, Frankston, Australia.
Neurodisability and Rehabilitation, Murdoch Children's Research Institute, Parkville, Australia.
Disabil Rehabil. 2024 Dec;46(24):5717-5729. doi: 10.1080/09638288.2024.2311879. Epub 2024 Feb 5.
To identify evidence of health literacy in young people with cerebral palsy (13-38 years), describe current strategies they use to access and build their health knowledge, and explore associations between health literacy and quality of life (QoL).
Four electronic databases were systematically searched (2001 to June 2023) to identify studies describing components of health literacy in this population. Two reviewers screened for eligibility, then extracted data and assessed methodological quality of included studies. Data were synthesised using a convergent integrated analysis framework and summarised with a narrative synthesis.
Eleven studies were included ( = 363). Evidence of health literacy was demonstrated through a range of strategies young people employed to identify their specific information needs, develop health literacy skills, and learn experientially. The preferred method for building health knowledge was obtaining information from trusted sources. Information gaps were identified in topics such as ageing with cerebral palsy, sexuality and navigating intimate relationships. There were minimal data on health literacy and QoL.
Young people with cerebral palsy want tailored and credible health information to increase participation in making informed health-related decisions. Building capacity and development of self-efficacy may assist with the identification of emerging health literacy needs.
确定青少年脑瘫患者（13-38 岁）的健康素养证据，描述他们目前获取和构建健康知识的策略，并探讨健康素养与生活质量（QoL）之间的关系。
系统检索了四个电子数据库（2001 年至 2023 年 6 月），以确定描述该人群健康素养组成部分的研究。两名审查员筛选合格研究，然后提取数据并评估纳入研究的方法学质量。使用综合分析框架对数据进行综合，并以叙述性综述进行总结。
共纳入 11 项研究（ = 363）。通过年轻人采用的一系列策略来确定他们的特定信息需求、发展健康素养技能和经验性学习，证明了健康素养的存在。建立健康知识的首选方法是从可信来源获取信息。在脑瘫患者衰老、性和亲密关系导航等主题中存在信息空白。关于健康素养和生活质量的数据很少。
脑瘫青少年希望获得量身定制和可信的健康信息，以增加参与做出明智的与健康相关的决策的机会。能力建设和自我效能的发展可能有助于确定新出现的健康素养需求。
