Strini Veronica, Prendin Angela, Cerrone Valentina, Schiavolin Roberta, de Barbieri Ilaria, Andretta Vincenzo, Fortino Luigi, Santella Biagio, Franci Gianluigi, Capunzo Mario, Boccia Giovanni
Clinical Research Unit, University-Hospital of Padua, Padua, Italy.
Palliative Care and Antalgic Therapy/Pediatric Hospice, University-Hospital of Padua, Padua, Italy.
Transl Med UniSa. 2023 Dec 29;25(2):38-49. doi: 10.37825/2239-9747.1044. eCollection 2023.
Cases of dementia have increased significantly in recent years. The family represents the main cornerstone of assistance to the elderly suffering from dementia, in particular the caregiver. Family members who take on the role of caregiver are subjected to physical, psychological, emotional, social and financial stress, which can be conceptualised with the term "burden". The aim of this study was to investigate which tools are best suited to measure the type of burden based on the type of dementia for each caregiver. A literature search was undertaken in MEDLINE, CINHAL and The Cochrane Database in September 2022, including articles from the last 20 years and using a combination of keywords and defined inclusion criteria. This literature review has been performed according to the PRISMA statement. From a total of 116 articles regarding the use of burden rating scales for caregivers, 18 scales were selected. The review provides a useful overview of burden assessment scales, classified into three categories, one-dimensional, multidimensional, or distinct concept with a subjective and objective component, in order to adopt appropriate strategies to assess caregiver burden and improve the quality of their health, both in the community and in hospitals. Indeed, the domestic context is the most studied as there is a greater risk of developing the burden of the caregiver: for this reason, some scales include the assessment of both the caregiver and the patient receiving treatment.
近年来，痴呆症病例显著增加。家庭是帮助患有痴呆症的老年人，尤其是照顾者的主要基石。承担照顾者角色的家庭成员会承受身体、心理、情感、社会和经济压力，这些压力可用“负担”一词来概括。本研究的目的是调查哪些工具最适合根据每位照顾者所照顾的痴呆症类型来衡量负担类型。2022年9月在MEDLINE、CINHAL和考科蓝数据库中进行了文献检索，包括过去20年的文章，并使用了关键词组合和明确的纳入标准。本系统评价已按照PRISMA声明进行。从总共116篇关于照顾者负担评定量表使用的文章中，选取了18个量表。该综述提供了一份有用的负担评估量表概述，分为三类：一维量表、多维量表或具有主观和客观成分的不同概念量表，以便采用适当策略评估照顾者负担，并改善他们在社区和医院环境中的健康状况。事实上，家庭环境是研究最多的，因为照顾者产生负担的风险更大：因此，一些量表包括对照顾者和接受治疗的患者的评估。
