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支持移民群体中为慢性病家庭成员提供无偿照料的2SLGBTQIA+群体照料者。

Supporting Migrant 2SLGBTQIA+ Unpaid Caregivers for Family Members Living with Chronic Illnesses.

作者信息

Haghiri-Vijeh Roya, Coatsworth-Puspoky Robin, Ramesh Harish, Shakibai Arvin, Dullius Willian Roger, Allan Marcus

机构信息

School of Nursing, Faculty of Health, York University, Toronto, ON M3J 1P3, Canada.

Department of Chemistry, Faculty of Science, York University, Toronto, ON M3J 1P3, Canada.

出版信息

Healthcare (Basel). 2025 Jun 27;13(13):1533. doi: 10.3390/healthcare13131533.

DOI:10.3390/healthcare13131533
PMID:40648558
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12249361/
Abstract

The literature details the healthcare needs of migrant people living with chronic illnesses and the consequent economic, social, and healthcare needs of their caregivers. Similarly, some studies have underscored the social and healthcare needs of 2SLGBTQIA+ (two-spirit, lesbian, gay, bisexual, transgender, queer, and intersex individuals, including diverse sexual and gender identities under the "+" symbol) adults living with chronic illnesses and their caregivers. This narrative review presents the context of migrant 2SLGBTQIA+ unpaid caregivers and how their intersecting identities influence their caregiving roles for family members with chronic illnesses. In this article, caregivers are defined as family members or chosen families who provide unpaid support that may last for three months or longer for people living with chronic illnesses. Most studies and policies overlook 2SLGBTQIA+ migrants who are also unpaid caregivers of individuals living with chronic illnesses, leaving them unsupported through discrimination at the intersection of racism, homophobia, transphobia, ageism, and ableism, forcing them to remain vulnerable to increased emotional and physical strain. There is a presence of pervasive systemic barriers, including a lack of training and education among social and healthcare providers, about the needs of migrant 2SLGBTQIA+ unpaid caregivers. Additional challenges stem from inadequate policies and insufficient targeted resources, particularly for caregivers from marginalized racial and ethnic backgrounds. The findings of this study highlight the necessity for a call to action to address these gaps and improve support systems for these highly marginalized communities.

摘要

文献详细阐述了慢性病患者移民群体的医疗保健需求,以及他们的照料者随之而来的经济、社会和医疗保健需求。同样,一些研究也强调了患有慢性病的2SLGBTQIA+(双性人、女同性恋者、男同性恋者、双性恋者、跨性别者、酷儿和双性人个体,“+”符号代表不同的性取向和性别认同)成年人及其照料者的社会和医疗保健需求。本叙述性综述介绍了移民2SLGBTQIA+无薪照料者的背景情况,以及他们相互交织的身份如何影响他们对慢性病家庭成员的照料角色。在本文中,照料者被定义为为慢性病患者提供可能持续三个月或更长时间无薪支持的家庭成员或选定的家庭。大多数研究和政策都忽视了身为慢性病患者无薪照料者的2SLGBTQIA+移民,使他们在种族主义、恐同症、恐跨症、年龄歧视和能力歧视的交叉点上因歧视而得不到支持,迫使他们容易受到情绪和身体压力增加的影响。存在普遍的系统性障碍,包括社会和医疗保健提供者缺乏关于移民2SLGBTQIA+无薪照料者需求的培训和教育。其他挑战源于政策不足和针对性资源不足,特别是对于来自边缘化种族和族裔背景的照料者。本研究的结果凸显了呼吁采取行动解决这些差距并改善这些高度边缘化社区支持系统的必要性。

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本文引用的文献

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Palliative care service provision and use among 2SLGBTQIA + individuals: a scoping review.2SLGBTQIA + 人群中的姑息治疗服务提供和使用情况:范围综述。
BMC Palliat Care. 2024 Oct 12;23(1):243. doi: 10.1186/s12904-024-01560-x.
2
Safer dementia care spaces: Perspectives from LGBTQ+ people with cognitive impairment and caregivers.更安全的痴呆症护理空间:认知障碍的 LGBTQ+ 群体及其照顾者的观点
Dementia (London). 2025 Feb;24(2):214-234. doi: 10.1177/14713012241284691. Epub 2024 Sep 18.
3
Intersectionality and Caregiving: The Exclusion Experience and Coping Resources of Immigrant Women Caring for a Family Member With Severe Mental Illness.交叉性与照护:照顾患有严重精神疾病家庭成员的移民妇女的被排斥经历及应对资源
Qual Health Res. 2025 May;35(6):611-625. doi: 10.1177/10497323241271996. Epub 2024 Sep 11.
4
Recommendations and Implementation Considerations for the Routine Collection of Sexual Orientation and Gender Identity Data in Research and Practice.研究与实践中常规收集性取向和性别认同数据的建议及实施考量
Am J Public Health. 2024 Aug;114(8):777-781. doi: 10.2105/AJPH.2024.307695.
5
"We're still alive, much to everyone's surprise": The experience of trans older adults living with dementia in an ageist, cisgenderist, and cogniticist society.“令所有人惊讶的是,我们还活着”:在一个年龄歧视、性别歧视和认知主义的社会中,跨龄成年人患有痴呆症的经历。
J Aging Stud. 2024 Mar;68:101208. doi: 10.1016/j.jaging.2024.101208. Epub 2024 Jan 16.
6
Scale of Assessment of Caregiver Care Burden of People With Dementia: A Systematic Review of Literature.痴呆症患者照顾者护理负担评估量表:文献系统综述
Transl Med UniSa. 2023 Dec 29;25(2):38-49. doi: 10.37825/2239-9747.1044. eCollection 2023.
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"Queer people are excellent caregivers, but we're stretched so very thin": Psychosocial wellbeing and impacts of caregiving among LGBTQI cancer carers.“酷儿人群是出色的照护者,但我们已经被极度地消耗了”:LGBTQI 癌症照护者的心理健康和照护影响。
BMC Cancer. 2024 Jan 5;24(1):36. doi: 10.1186/s12885-023-11732-2.
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Review of current 2SLGBTQIA+ inequities in the Canadian health care system.加拿大医疗保健系统中当前 2SLGBTQIA+ 不平等现象的综述。
Front Public Health. 2023 Jul 18;11:1183284. doi: 10.3389/fpubh.2023.1183284. eCollection 2023.
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Inequities Among Cancer Caregivers with Diverse Identities: A Review of the Literature and Future Directions.癌症照顾者身份多样性的不公平现象:文献综述及未来方向。
Curr Oncol Rep. 2023 Jul;25(7):803-812. doi: 10.1007/s11912-023-01415-3. Epub 2023 Apr 12.