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德国和西班牙基于电子健康的心脏康复患者需求和期望的生活实验室数据:TIMELY 研究的横断面分析。

Living Lab Data of Patient Needs and Expectations for eHealth-Based Cardiac Rehabilitation in Germany and Spain From the TIMELY Study: Cross-Sectional Analysis.

机构信息

Department of Rehabilitation Sciences, Faculty of Health, University of Witten/Herdecke, Witten, Germany.

Center for Medical Rehabilitation, DRV Clinic Königsfeld, Ennepetal, Germany.

出版信息

J Med Internet Res. 2024 Feb 22;26:e53991. doi: 10.2196/53991.

Abstract

BACKGROUND

The use of eHealth technology in cardiac rehabilitation (CR) is a promising approach to enhance patient outcomes since adherence to healthy lifestyles and risk factor management during phase III CR maintenance is often poorly supported. However, patients' needs and expectations have not been extensively analyzed to inform the design of such eHealth solutions.

OBJECTIVE

The goal of this study was to provide a detailed patient perspective on the most important functionalities to include in an eHealth solution to assist them in phase III CR maintenance.

METHODS

A guided survey as part of a Living Lab approach was conducted in Germany (n=49) and Spain (n=30) involving women (16/79, 20%) and men (63/79, 80%) with coronary artery disease (mean age 57 years, SD 9 years) participating in a structured center-based CR program. The survey covered patients' perceived importance of different CR components in general, current usage of technology/technical devices, and helpfulness of the potential features of eHealth in CR. Questionnaires were used to identify personality traits (psychological flexibility, optimism/pessimism, positive/negative affect), potentially predisposing patients to acceptance of an app/monitoring devices.

RESULTS

All the patients in this study owned a smartphone, while 30%-40% used smartwatches and fitness trackers. Patients expressed the need for an eHealth platform that is user-friendly, personalized, and easily accessible, and 71% (56/79) of the patients believed that technology could help them to maintain health goals after CR. Among the offered components, support for regular physical exercise, including updated schedules and progress documentation, was rated the highest. In addition, patients rated the availability of information on diagnosis, current medication, test results, and risk scores as (very) useful. Of note, for each item, except smoking cessation, 35%-50% of the patients indicated a high need for support to achieve their long-term health goals, suggesting the need for individualized care. No major differences were detected between Spanish and German patients (all P>.05) and only younger age (P=.03) but not sex, education level, or personality traits (all P>.05) were associated with the acceptance of eHealth components.

CONCLUSIONS

The patient perspectives collected in this study indicate high acceptance of personalized user-friendly eHealth platforms with remote monitoring to improve adherence to healthy lifestyles among patients with coronary artery disease during phase III CR maintenance. The identified patient needs comprise support in physical exercise, including regular updates on personalized training recommendations. Availability of diagnoses, laboratory results, and medications, as part of a mobile electronic health record were also rated as very useful.

TRIAL REGISTRATION

ClinicalTrials.gov NCT05461729; https://clinicaltrials.gov/study/NCT05461729.

摘要

背景

在心脏康复(CR)中使用电子健康技术是一种很有前途的方法,可以提高患者的治疗效果,因为在 CR 第三阶段维持期,患者通常难以坚持健康的生活方式和管理风险因素。然而,尚未广泛分析患者的需求和期望,以告知此类电子健康解决方案的设计。

目的

本研究的目的是从患者的角度详细了解电子健康解决方案中应包含的最重要功能,以帮助他们在 CR 第三阶段维持期进行自我管理。

方法

在德国(n=49)和西班牙(n=30)进行了一项以生活实验室为基础的指导调查,涉及 16 名(16/79,20%)和 63 名(63/79,80%)患有冠状动脉疾病的女性和男性患者(平均年龄 57 岁,SD 9 岁),他们均参加了结构化的中心基础 CR 项目。调查涵盖了患者对一般 CR 成分的重要性感知、对技术/技术设备的当前使用情况,以及电子健康在 CR 中的潜在功能的帮助程度。问卷用于确定人格特质(心理灵活性、乐观/悲观、积极/消极情绪),这些特质可能使患者更容易接受应用程序/监测设备。

结果

本研究中的所有患者都拥有一部智能手机,而 30%-40%的患者使用智能手表和健身追踪器。患者表示需要一个用户友好、个性化和易于访问的电子健康平台,并且 71%(56/79)的患者认为技术可以帮助他们在 CR 后保持健康目标。在所提供的组件中,支持定期进行体育锻炼,包括更新时间表和进度记录,评分最高。此外,患者还认为提供诊断、当前药物、测试结果和风险评分的信息非常有用。值得注意的是,除了戒烟,对于每个项目,有 35%-50%的患者表示需要高度支持以实现其长期健康目标,这表明需要个性化护理。在西班牙和德国患者之间未发现明显差异(均 P>.05),只有年龄较小(P=.03)而不是性别、教育程度或人格特质(均 P>.05)与电子健康组件的接受程度相关。

结论

本研究收集的患者观点表明,患者高度接受个性化、用户友好的远程监测电子健康平台,以提高冠状动脉疾病患者在 CR 第三阶段维持期坚持健康生活方式的依从性。确定的患者需求包括在身体锻炼方面的支持,包括个性化训练建议的定期更新。作为移动电子健康记录的一部分,提供诊断、实验室结果和药物信息也被评为非常有用。

试验注册

ClinicalTrials.gov NCT05461729;https://clinicaltrials.gov/study/NCT05461729。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a9c3/10921324/cf3eeeb07756/jmir_v26i1e53991_fig1.jpg

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