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Assessment of ownership of smart devices and the acceptability of digital health data sharing.

作者信息

Shandhi Md Mobashir Hasan, Singh Karnika, Janson Natasha, Ashar Perisa, Singh Geetika, Lu Baiying, Hillygus D Sunshine, Maddocks Jennifer M, Dunn Jessilyn P

机构信息

Department of Biomedical Engineering, Duke University, Durham, NC, USA.

Duke University Health System, Durham, NC, USA.

出版信息

NPJ Digit Med. 2024 Feb 22;7(1):44. doi: 10.1038/s41746-024-01030-x.


DOI:10.1038/s41746-024-01030-x
PMID:38388660
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10883993/
Abstract

Smart portable devices- smartphones and smartwatches- are rapidly being adopted by the general population, which has brought forward an opportunity to use the large volumes of physiological, behavioral, and activity data continuously being collected by these devices in naturalistic settings to perform research, monitor health, and track disease. While these data can serve to revolutionize health monitoring in research and clinical care, minimal research has been conducted to understand what motivates people to use these devices and their interest and comfort in sharing the data. In this study, we aimed to characterize the ownership and usage of smart devices among patients from an expansive academic health system in the southeastern US and understand their willingness to share data collected by the smart devices. We conducted an electronic survey of participants from an online patient advisory group around smart device ownership, usage, and data sharing. Out of the 3021 members of the online patient advisory group, 1368 (45%) responded to the survey, with 871 female (64%), 826 and 390 White (60%) and Black (29%) participants, respectively, and a slight majority (52%) age 58 and older. Most of the respondents (98%) owned a smartphone and the majority (59%) owned a wearable. In this population, people who identify as female, Hispanic, and Generation Z (age 18-25), and those completing higher education and having full-time employment, were most likely to own a wearable device compared to their demographic counterparts. 50% of smart device owners were willing to share and 32% would consider sharing their smart device data for research purposes. The type of activity data they are willing to share varies by gender, age, education, and employment. Findings from this study can be used to design both equitable and cost-effective digital health studies, leveraging personally-owned smartphones and wearables in representative populations, ultimately enabling the development of equitable digital health technologies.

摘要
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a802/10883993/b4631bc8b107/41746_2024_1030_Fig5_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a802/10883993/79e213aefb9a/41746_2024_1030_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a802/10883993/0cafd92c3b06/41746_2024_1030_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a802/10883993/7c37403304f9/41746_2024_1030_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a802/10883993/51614da33345/41746_2024_1030_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a802/10883993/b4631bc8b107/41746_2024_1030_Fig5_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a802/10883993/79e213aefb9a/41746_2024_1030_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a802/10883993/0cafd92c3b06/41746_2024_1030_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a802/10883993/7c37403304f9/41746_2024_1030_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a802/10883993/51614da33345/41746_2024_1030_Fig4_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a802/10883993/b4631bc8b107/41746_2024_1030_Fig5_HTML.jpg

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本文引用的文献

[1]
Association Between Wearable Device Use and Levels of Physical Activity Among Older Adults in the US: Evidence From the 2019-2020 Health Information National Trends Survey.

Cureus. 2023-8-28

[2]
Use of Wearable Devices in Individuals With or at Risk for Cardiovascular Disease in the US, 2019 to 2020.

JAMA Netw Open. 2023-6-1

[3]
Understanding Public Attitudes and Willingness to Share Commercial Data for Health Research: Survey Study in the United Kingdom.

JMIR Public Health Surveill. 2023-3-23

[4]
Survey on e-health knowledge and usage in general cardiology of the Council of Cardiology Practice and the Digital Health Committee.

Eur Heart J Digit Health. 2021-4-7

[5]
Assessment of Racial and Ethnic Differences in Oxygen Supplementation Among Patients in the Intensive Care Unit.

JAMA Intern Med. 2022-8-1

[6]
Wearable smart devices in cancer diagnosis and remote clinical trial monitoring: Transforming the healthcare applications.

Drug Discov Today. 2022-10

[7]
Disparities in Hypoxemia Detection by Pulse Oximetry Across Self-Identified Racial Groups and Associations With Clinical Outcomes.

Crit Care Med. 2022-2-1

[8]
Consumer Willingness to Share Personal Digital Information for Health-Related Uses.

JAMA Netw Open. 2022-1-4

[9]
Willingness to Share Data From Wearable Health and Activity Trackers: Analysis of the 2019 Health Information National Trends Survey Data.

JMIR Mhealth Uhealth. 2021-12-13

[10]
Analysis of Discrepancies Between Pulse Oximetry and Arterial Oxygen Saturation Measurements by Race and Ethnicity and Association With Organ Dysfunction and Mortality.

JAMA Netw Open. 2021-11-1

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