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“大逃亡”:一起私奔事件如何引发了对一名多重弱势患者的创伤知情姑息治疗。

"The great escape": how an incident of elopement gave rise to trauma informed palliative care for a patient experiencing multiple disadvantage.

机构信息

End of Life Studies Group, University of Glasgow, Dumfries Campus, Dumfries and Galloway, Scotland, DG1 4ZL, UK.

Marie Curie Scotland, 133 Balornock Road, Stobhill, Glasgow, Scotland, G21 3US, UK.

出版信息

BMC Palliat Care. 2024 Feb 28;23(1):61. doi: 10.1186/s12904-024-01374-x.

Abstract

BACKGROUND

This case report from Scotland, UK illustrates how unresolved traumatic experiences across the life course can affect a patient's engagement with palliative care and offers insights into the flexibility and adaptations necessary for taking a trauma informed approach to care for an individual experiencing multiple disadvantage. Trauma informed care is a cornerstone in the pursuit of equitable palliative care, particularly for those facing multiple disadvantage, as it acknowledges the impact of past traumas on current healthcare experiences, and fosters an environment of understanding, acceptance, and tailored support to alleviate suffering in the final stages of life.

CASE PRESENTATION

"M" was a veteran with a history of homelessness, living with end stage anal cancer and symptoms consistent with post-traumatic stress disorder, although he never received a formal diagnosis. M exhibited complex behaviours perceived to be related to his history of trauma, including his decision to elope from the hospice, reluctance to accept personal care from nurses, and unpredictability. These behaviours posed a significant challenge to his palliative care team, both in the hospice and at home. An individualised and flexible approach to care delivery was eventually adopted, which included a 'safety-netting' approach and care delivery outside of the hospice. M was ultimately supported to remain at home until a week before he died.

CONCLUSION

M's case underscores the necessity of adopting a trauma informed approach to palliative care, particularly for patients with a history of trauma and multiple disadvantage. The case highlights the importance of understanding and respecting a patient's past traumas, promoting safety and autonomy, and ensuring flexibility in care delivery.

摘要

背景

本病例报告来自英国苏格兰,说明了贯穿患者一生的未解决的创伤经历如何影响其接受姑息治疗的意愿,并深入探讨了为经历多重不利因素的个体提供以创伤知情为基础的护理所需的灵活性和适应性。创伤知情护理是追求公平姑息治疗的基石,特别是对于那些面临多重不利因素的患者,因为它承认过去创伤对当前医疗保健体验的影响,并营造了一个理解、接受和量身定制支持的环境,以减轻生命末期的痛苦。

病例介绍

“M”是一名退伍军人,有过无家可归的经历,患有晚期肛门癌,并伴有创伤后应激障碍的症状,尽管他从未接受过正式诊断。M 表现出与他的创伤史相关的复杂行为,包括他从临终关怀机构逃跑、不愿接受护士的个人护理以及不可预测性的决定。这些行为给姑息治疗团队带来了巨大挑战,无论是在临终关怀机构还是在家里。最终,他们采取了个性化和灵活的护理提供方式,包括“安全网”方法和在临终关怀机构之外提供护理。M 最终在家中得到支持,直到他去世前一周。

结论

M 的病例强调了在姑息治疗中采用创伤知情方法的必要性,特别是对于有创伤和多重不利因素的患者。该病例突出了理解和尊重患者过去创伤、促进安全和自主权以及确保护理提供灵活性的重要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1719/10900545/a987e99b77d3/12904_2024_1374_Fig2_HTML.jpg

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