School of Kinesiology and Health Sciences, Laurentian University, Sudbury, ON, Canada.
Department of Health Research Methods, Evidence and Impact, McMaster University, Hamilton, ON, Canada.
Syst Rev. 2024 Feb 29;13(1):78. doi: 10.1186/s13643-024-02496-2.
Health assessment tools developed using mainstream or Western concepts have been widely used in clinical practice worldwide. However, even culturally adapted or culturally based tools may not be relevant in other social contexts if they are grounded in Western beliefs and perspectives. The application of mainstream assessment tools, when used in Indigenous populations, can lead to the inappropriate application of normative data and inaccurate or biased diagnosis of conditions as Indigenous concepts of health differ from Western biomedical concepts of health. Thus, considering the need for culturally meaningful, sensitive, safe, and unbiased health assessment approaches and instruments over recent years, tools have been developed or adapted by and with Indigenous populations in Australia, Aotearoa/New Zealand, Canada, and the United States. However, there is no existing systematic or scoping review to identify the methods and approaches used in adapting or developing health assessment tools for use with the Indigenous population in Australia, Aotearoa/New Zealand, Canada, and the United States.
In response to these gaps, we are working with a First Nations Community Advisory Group in Northern Ontario, Canada, to undertake a scoping review following the 2020 JBI methodology for scoping reviews. A systematic search will be conducted in PubMed, APA PsychINFO, CINAHL, MEDLINE, Web of Science, Bibliography of Native North Americans, Australian Indigenous Health info data set, and Indigenous Health Portal. Two reviewers will independently screen all abstracts and full-text articles for inclusion using criteria co-developed with an advisory group. We will chart the extracted information and summarize and synthesize the data. The summarized findings will be presented to a Community Advisory Group, including First Nations community partners, an Elder, and community members, and their feedback will be incorporated into the discussion section of the scoping review.
This scoping review involves iterative consultation with the Indigenous and non-Indigenous scholars, First Nations Community Advisory Group, and community partners throughout the research process. This review aims to summarize the evidence on standard ethical approaches and practices used in Indigenous research while adapting or developing health assessment tools. It will inform the larger study focused on developing an Indigenous Functional Assessment tool. Further, it will seek whether the Indigenous ways of knowing and equitable participation of Indigenous people and communities are incorporated in the Indigenous research process.
Open Science Framework https://osf.io/yznwk .
使用主流或西方概念开发的健康评估工具已在全球临床实践中广泛使用。然而，即使是经过文化适应或基于文化的工具，如果它们基于西方的信仰和观点，在其他社会背景下也可能不相关。在原住民群体中使用主流评估工具可能导致不恰当地应用规范数据和不准确或有偏见的疾病诊断，因为原住民的健康概念与西方生物医学的健康概念不同。因此，近年来考虑到需要具有文化意义、敏感、安全和无偏见的健康评估方法和工具，澳大利亚、新西兰、加拿大和美国的原住民群体已经开发或改编了这些工具。然而，目前没有现有的系统或范围综述来确定用于适应或开发澳大利亚、新西兰、加拿大和美国原住民群体使用的健康评估工具的方法和方法。
为了应对这些差距，我们正在与加拿大安大略省北部的一个第一民族社区咨询小组合作，按照 2020 年 JBI 范围综述方法开展范围综述。将在 PubMed、APA PsychINFO、CINAHL、MEDLINE、Web of Science、北美原住民文献目录、澳大利亚原住民健康信息数据集和原住民健康门户中进行系统搜索。两名评审员将使用与咨询小组共同制定的标准，独立筛选所有摘要和全文文章以确定是否符合纳入标准。我们将对提取的信息进行图表绘制，并对数据进行总结和综合。总结的结果将提交给社区咨询小组，包括第一民族社区合作伙伴、一位长者和社区成员，他们的反馈将纳入范围综述的讨论部分。
这项范围综述涉及在整个研究过程中与原住民和非原住民学者、第一民族社区咨询小组和社区合作伙伴进行迭代协商。本次综述旨在总结在适应或开发健康评估工具时使用的标准伦理方法和实践的证据。它将为专注于开发原住民功能评估工具的更大研究提供信息。此外，它将研究原住民的认知方式和原住民社区的公平参与是否纳入原住民研究过程。
Open Science Framework https://osf.io/yznwk 。
