Meudec Marie, Affun-Adegbulu Clara, Cosaert Theo
The Population Data Science Hub, Department of Public Health, Institute of Tropical Medicine, Antwerp, 2000, Belgium.
F1000Res. 2023 Dec 7;12:57. doi: 10.12688/f1000research.128331.1. eCollection 2023.
Historically, across Europe, data and research on/with racially minoritised groups have not been collected or carried out in a sufficient, adequate, or appropriate manner. Yet, to understand emerging and existing health disparities among such groups, researchers and policymakers must obtain and use data to build evidence that informs decision-making and action on key structural and social determinants of health. This systematic search and review aims to contribute to closing this gap and promote a race-conscious approach to health research, strengthening the utilisation and deployment of data and research on/with racially minoritised groups in Europe. Its ultimate goal is to improve equality and equity in health*. Concretely, the study will do so by reviewing and critically analysing the usage of the concepts of race, ethnicity, and their related euphemisms and proxies in health-related research. It will examine the collection, use, and deployment of data and research on/with racially minoritised groups in this area. The study will focus on Belgium, France, and the Netherlands, three countries with graphical proximity and several similarities, one of which is the limited attention that is given to racism and racial inequalities in health in research and policy. This choice is also justified by practical knowledge of the context and languages. The results of the review will be used to develop guidance on how to use and deploy data and research on/with racially minoritised groups. The review is part of a larger project which aims to promote race-conscious research and data. The project does this by a three-pronged approach which: 1) highlights the need for a race-conscious approach when collecting and using data, carrying out research on/with racially minoritised groups; 2) builds expertise for their effective use and deployment, and; 3) creates a knowledge network and community of practice for public health researchers working in Europe.
从历史上看，在整个欧洲，针对少数族裔群体的数据收集和研究工作一直都不够充分、全面或恰当。然而，为了了解这些群体中正在出现的以及现存的健康差异，研究人员和政策制定者必须获取并使用数据，以建立相关证据，为有关健康的关键结构和社会决定因素的决策与行动提供依据。此次系统的检索与综述旨在缩小这一差距，并推动在健康研究中采用注重种族因素的方法，加强对欧洲少数族裔群体数据及相关研究的利用与应用。其最终目标是改善健康方面的平等与公平。具体而言，该研究将通过回顾和批判性分析种族、族裔概念及其相关委婉语和替代词在健康相关研究中的使用情况来实现这一目标。它将审视该领域针对少数族裔群体的数据收集、使用及应用情况。该研究将聚焦于比利时、法国和荷兰这三个地理位置相近且有诸多相似之处的国家，其中一个相似之处在于，在研究和政策中，对健康领域的种族主义和种族不平等问题关注有限。这种选择也是基于对相关背景和语言的实际了解。综述结果将用于制定有关如何使用和应用少数族裔群体数据及相关研究的指南。该综述是一个更大项目的一部分，该项目旨在推动注重种族因素的研究和数据。该项目通过三管齐下的方法来实现这一目标：1）强调在收集和使用数据、对少数族裔群体开展研究时，需要采用注重种族因素的方法；2）培养有效使用和应用这些数据及研究的专业技能；3）为在欧洲工作的公共卫生研究人员创建一个知识网络和实践社区。
