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癌症护理者的健康素养、电子健康素养及其与负担、痛苦和自我效能感的关联。

Health literacy, eHealth literacy and their association with burden, distress, and self-efficacy among cancer caregivers.

作者信息

Moore Chloe, Gallagher Pamela, Dunne Simon

机构信息

School of Psychology, Dublin City University, Dublin, Ireland.

出版信息

Front Psychol. 2024 Feb 16;15:1283227. doi: 10.3389/fpsyg.2024.1283227. eCollection 2024.

DOI:10.3389/fpsyg.2024.1283227
PMID:38434952
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10904647/
Abstract

PURPOSE

Health literacy skills are vital for cancer caregivers in helping cancer survivors to navigate their diagnosis, treatment, and recovery but little is known. This study explored health literacy and eHealth literacy among cancer caregivers and the relationship between health literacy/eHealth literacy and potential associated factors.

METHODS

Informal caregivers who had cared for an individual with cancer completed a survey which collected demographic data and measured caregiver health literacy, eHealth literacy, self-efficacy, burden, and distress.

RESULTS

Seven percent of caregivers had inadequate health literacy. Caregivers scored lowest on health literacy domains related to caregiver social support, information seeking and understanding care recipient preferences. eHealth literacy was associated with self-efficacy and burden while, different health literacy domains were associated with burden (''), self-efficacy ('' and '') and distress (', ', '').

CONCLUSION

Findings highlight key areas of need regarding cancer caregiver health literacy which future research can target. Given the observed relationship between aspects of health literacy and burden, distress and self-efficacy future work could be carried out on how to alleviate high levels of burden and distress and how to enhance self-efficacy among cancer caregivers by addressing health literacy skills.

IMPLICATIONS FOR CANCER SURVIVORS

Findings from this study will inform the development of health literacy interventions to support caregivers to build their health literacy skills and enable this group to better support cancer survivors as a result.

摘要

目的

健康素养技能对于癌症护理者帮助癌症幸存者应对诊断、治疗和康复至关重要，但目前对此了解甚少。本研究探讨了癌症护理者的健康素养和电子健康素养，以及健康素养/电子健康素养与潜在相关因素之间的关系。

方法

照顾过癌症患者的非正式护理者完成了一项调查，该调查收集了人口统计学数据，并测量了护理者的健康素养、电子健康素养、自我效能感、负担和痛苦程度。

结果

7%的护理者健康素养不足。护理者在与护理者社会支持、信息寻求和理解受护理者偏好相关的健康素养领域得分最低。电子健康素养与自我效能感和负担相关，而不同的健康素养领域与负担（“”）、自我效能感（“”和“”）和痛苦程度（“，”，“”）相关。

结论

研究结果突出了癌症护理者健康素养方面的关键需求领域，未来的研究可以针对这些领域。鉴于观察到的健康素养各方面与负担、痛苦程度和自我效能感之间的关系，未来可以开展工作，探讨如何通过提高健康素养技能来减轻癌症护理者的高负担和痛苦程度，以及如何增强他们的自我效能感。

对癌症幸存者的启示

本研究结果将为健康素养干预措施的制定提供信息，以支持护理者培养他们的健康素养技能，从而使这一群体能够更好地支持癌症幸存者。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6c98/10904647/8f4ee35d9c03/fpsyg-15-1283227-g004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6c98/10904647/5d481fee3b65/fpsyg-15-1283227-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6c98/10904647/02972b5f829e/fpsyg-15-1283227-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6c98/10904647/5f4e17d081c6/fpsyg-15-1283227-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6c98/10904647/8f4ee35d9c03/fpsyg-15-1283227-g004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6c98/10904647/5d481fee3b65/fpsyg-15-1283227-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6c98/10904647/02972b5f829e/fpsyg-15-1283227-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6c98/10904647/5f4e17d081c6/fpsyg-15-1283227-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6c98/10904647/8f4ee35d9c03/fpsyg-15-1283227-g004.jpg

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