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评估囊性纤维化患儿父母的应对策略。

Evaluation of coping strategies of parents of children with cystic fibrosis.

机构信息

Department of Social Work, Institute of Health Sciences, Faculty of Health, Ankara University, Ankara, Turkey.

Department of Social Work, Faculty of Economics and Administrative Sciences, Hacettepe University, Ankara, Turkey.

出版信息

Soc Work Health Care. 2024;63(4-5):349-369. doi: 10.1080/00981389.2024.2324858. Epub 2024 Mar 13.

DOI:10.1080/00981389.2024.2324858
PMID:38477619
Abstract

This cross-sectional quantitative study was conducted to evaluate the coping strategies of parents of children with cystic fibrosis. The research sample is the parents (n: 112) who presented to Thoracic Medicine Department at Hacettepe University Pediatric Hospital between 3 April 2021 - 28 May 2021 and volunteered to participate in the study. Sociodemographic Data Form and Coping Orientation to Problems Experienced Inventory (COPE Inventory) were used in the collection of data. The study examined coping strategies according to children's characteristics such as age, sex, education, and parents' independent variables such as employment status, income status, number of individuals and children in the family, communication with other families, social and financial support. Data were analyzed using Mann-Whitney and Kruskal-Wallis tests. Research findings show that religious coping was the most frequently preferred coping strategy, and behavioral disengagement was the least commonly used coping strategy. Emotion-Focused Coping Strategies were also commonly used. Social work interventions and strategies play an important role in helping parents to adopt positive coping strategies and improve their skills.

摘要

本横断面定量研究旨在评估囊性纤维化患儿父母的应对策略。研究样本为 2021 年 4 月 3 日至 5 月 28 日期间在哈塞特佩大学儿童医院胸科就诊并自愿参加研究的父母(n=112)。在数据收集过程中使用了社会人口统计学数据表格和应对体验量表(COPE 量表)。该研究根据儿童的年龄、性别、教育等特征以及父母的就业状况、收入状况、家庭人数和儿童人数、与其他家庭的沟通、社会和经济支持等自变量,考察了应对策略。数据采用 Mann-Whitney 和 Kruskal-Wallis 检验进行分析。研究结果表明,宗教应对是最常采用的应对策略,而行为脱离是最不常采用的应对策略。情绪聚焦应对策略也经常被采用。社会工作干预和策略在帮助父母采用积极的应对策略和提高他们的技能方面发挥着重要作用。

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