• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

作为科学和经验专家共同合作:当前的伦理参与式行动研究原则在一个针对患有发育性语言障碍的年轻人的研究团队中如何发挥作用?

Working together as scientific and experiential experts: how do current ethical PAR-principles work in a research team with young adults with Developmental Language Disorder?

作者信息

Aussems Karijn, Isarin Jet, Niemeijer Alistair, Dedding Christine

机构信息

Academy, Royal Dutch Kentalis, Utrecht, the Netherlands.

Department of Ethics, Law and Humanities, Amsterdam UMC (Location VUmc), Amsterdam, the Netherlands.

出版信息

Educ Action Res. 2022 Oct 6;32(2):311-326. doi: 10.1080/09650792.2022.2130386. eCollection 2024.

DOI:10.1080/09650792.2022.2130386
PMID:38504698
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10946222/
Abstract

Participatory Action Research (PAR) brings unique ethical challenges. Scholars have developed seven ethical principles to address these challenges. So far, little has been published on how these ethical principles (are put to) work in different fields. We used the principles to evaluate our collaboration with co-researchers with developmental language disorder (DLD). This article aims to explore how the principles helped to reflect on the ongoing research practice. First, we needed to simplify the language of the principles so that the co-researchers could understand how they relate to concrete practices. Second, the co-researchers needed to be reminded of specific events before they could relate the principles to their own experiences. Lastly, for an evaluation of (co-) researchers dealing with multiple roles, from friend to colleague and client, this theme has been specifically included to the principle of personal integrity, so that it cannot be overlooked. Looking through a care ethical lens, we suggest speaking of rather than (ethical) principles, as it more clearly communicates that these insights are based on learning by doing and are not fixed, but build on (good) practices, whilst still allowing enough room for adjustments to the particularities inherent to each research process.

摘要

参与式行动研究(PAR)带来了独特的伦理挑战。学者们已制定了七条伦理原则来应对这些挑战。到目前为止,关于这些伦理原则如何在不同领域发挥作用的相关著述甚少。我们运用这些原则来评估我们与患有发育性语言障碍(DLD)的共同研究者之间的合作。本文旨在探讨这些原则如何有助于反思正在进行的研究实践。首先,我们需要简化原则的表述,以便共同研究者能够理解它们与具体实践的关联。其次,需要提醒共同研究者特定的事件,然后他们才能将这些原则与自身经历联系起来。最后,为了评估(共同)研究者所扮演的多重角色,从朋友到同事再到客户,这一主题已被特别纳入个人诚信原则之中,使其不会被忽视。从关怀伦理的视角来看,我们建议提及“关怀伦理视角下的见解”而非(伦理)原则,因为这样能更清晰地传达出这些见解是基于实践中的学习,并非一成不变,而是建立在(良好)实践基础之上,同时仍为适应每个研究过程所固有的特殊性留出足够的调整空间。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9dab/10946222/c56fac2c8fe1/REAC_A_2130386_F0001_B.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9dab/10946222/c56fac2c8fe1/REAC_A_2130386_F0001_B.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9dab/10946222/c56fac2c8fe1/REAC_A_2130386_F0001_B.jpg

相似文献

1
Working together as scientific and experiential experts: how do current ethical PAR-principles work in a research team with young adults with Developmental Language Disorder?作为科学和经验专家共同合作:当前的伦理参与式行动研究原则在一个针对患有发育性语言障碍的年轻人的研究团队中如何发挥作用?
Educ Action Res. 2022 Oct 6;32(2):311-326. doi: 10.1080/09650792.2022.2130386. eCollection 2024.
2
The future of Cochrane Neonatal.考克兰新生儿协作网的未来。
Early Hum Dev. 2020 Nov;150:105191. doi: 10.1016/j.earlhumdev.2020.105191. Epub 2020 Sep 12.
3
Developmental language disorder and neurodiversity: Surfacing contradictions, tensions and unanswered questions.发展性语言障碍与神经多样性:揭示矛盾、紧张关系和未解决的问题。
Int J Lang Commun Disord. 2024 Jul-Aug;59(4):1505-1516. doi: 10.1111/1460-6984.13009. Epub 2024 Jan 26.
4
Guiding principles for quality, ethical standards and ongoing learning in implementation research: multicountry learnings from participatory action research to strengthen health systems.实施研究中的质量、道德标准及持续学习指导原则:参与式行动研究的多国经验以强化卫生系统
Health Policy Plan. 2020 Nov 1;35(Supplement_2):ii137-ii149. doi: 10.1093/heapol/czaa123.
5
Culture of Care: Organizational Responsibilities关怀文化:组织职责
6
Exploring Elinor Ostrom's principles for collaborative group working within a user-led project: lessons from a collaboration between researchers and a user-led organisation.探索埃莉诺·奥斯特罗姆在用户主导项目中进行协作式团队合作的原则:来自研究人员与用户主导组织合作的经验教训。
Res Involv Engagem. 2024 Jan 29;10(1):15. doi: 10.1186/s40900-024-00548-4.
7
Co-producing principles to guide health research: an illustrative case study from an eating disorder research clinic.共同制定指导健康研究的原则:来自一家饮食失调研究诊所的实例研究
Res Involv Engagem. 2023 Sep 20;9(1):84. doi: 10.1186/s40900-023-00460-3.
8
Collaborative working in speech and language therapy for children with DLD-What are parents' needs?儿童语言发育迟缓的言语和语言治疗中的协作工作-家长的需求是什么?
Int J Lang Commun Disord. 2024 Jan-Feb;59(1):340-353. doi: 10.1111/1460-6984.12951. Epub 2023 Sep 16.
9
Participatory evaluation of the process of co-producing resources for the public on data science and artificial intelligence.关于为公众共同生产数据科学和人工智能资源过程的参与式评估。
Res Involv Engagem. 2023 Aug 14;9(1):67. doi: 10.1186/s40900-023-00480-z.
10
Involving carer advisors in evidence synthesis to improve carers' mental health during end-of-life home care: co-production during COVID-19 remote working.让护理顾问参与证据综合工作以改善临终居家护理期间护理人员的心理健康:新冠疫情远程工作期间的共同制作。
Health Soc Care Deliv Res. 2023 Oct;13(8):1-48. doi: 10.3310/TGHH6428.

引用本文的文献

1
The meaning of ethical collaborative research according to young people.年轻人眼中道德协作研究的意义。
Int J Adolesc Youth. 2025 Jun 18;30(1):2517099. doi: 10.1080/02673843.2025.2517099. eCollection 2025.

本文引用的文献

1
"About sixty per cent I want to do it": Health researchers' attitudes to, and experiences of, patient and public involvement (PPI)-A qualitative interview study.“约60%的人表示愿意参与”:健康领域研究人员对患者及公众参与(PPI)的态度与经历——一项定性访谈研究
Health Expect. 2019 Aug;22(4):721-730. doi: 10.1111/hex.12883. Epub 2019 Mar 29.
2
Education and employment outcomes of young adults with a history of developmental language disorder.有发育性语言障碍病史的年轻人的教育和就业成果。
Int J Lang Commun Disord. 2018 Mar;53(2):237-255. doi: 10.1111/1460-6984.12338. Epub 2017 Nov 15.
3
Beyond demarcation: Care ethics as an interdisciplinary field of inquiry.
超越界限:关怀伦理学作为一个跨学科的探究领域。
Nurs Ethics. 2019 Feb;26(1):17-25. doi: 10.1177/0969733017707008. Epub 2017 May 26.
4
Analyzing dignity: a perspective from the ethics of care.剖析尊严:一种来自关怀伦理学的视角。
Med Health Care Philos. 2013 Nov;16(4):945-52. doi: 10.1007/s11019-012-9427-3.
5
The heart of the matter. About good nursing and telecare.关键所在。关于优质护理和远程护理。
Health Care Anal. 2010 Dec;18(4):374-88. doi: 10.1007/s10728-009-0140-1.
6
Prevalence and natural history of primary speech and language delay: findings from a systematic review of the literature.原发性言语和语言发育迟缓的患病率及自然史:文献系统评价结果
Int J Lang Commun Disord. 2000 Apr-Jun;35(2):165-88. doi: 10.1080/136828200247133.
7
Prevalence of specific language impairment in kindergarten children.幼儿园儿童特定语言障碍的患病率。
J Speech Lang Hear Res. 1997 Dec;40(6):1245-60. doi: 10.1044/jslhr.4006.1245.