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合法获取供精者信息的年龄限制:供精者所生孩子、父母、供精者和咨询师的经验。

Legal age limits in accessing donor information: experiences of donor-conceived people, parents, sperm donors and counsellors.

机构信息

Fiom, 's-Hertogenbosch, The Netherlands..

Fiom, 's-Hertogenbosch, The Netherlands.

出版信息

Reprod Biomed Online. 2024 Jun;48(6):103846. doi: 10.1016/j.rbmo.2024.103846. Epub 2024 Jan 24.

DOI:10.1016/j.rbmo.2024.103846
PMID:38579663
Abstract

RESEARCH QUESTION

What are the lived experiences of donor-conceived people, parents, sperm donors and counsellors related to legal age limits on accessing donor information in the Netherlands?

DESIGN

A phenomenological study was carried out that included 20 donor-conceived individuals, 15 parents, 6 sperm donors and 5 counsellors. Data were collected through online qualitative in-depth interviews and focus groups. The data were analysed using Dahlberg's Reflective Lifeworld Approach.

RESULTS

The results show how: (i) age limits create challenges related to dependency, autonomy and loyalty to parents; (ii) donor information can be important for identity development, which looks different at different ages; (iii) inaccessible information can lead to unfair loss and may be perceived as negative; (iv) relational stability provides a good foundation for dealing with the (in)accessibility of donor information; (v) procedural barriers and age limits increase the inaccessibility of donor information; and (vi) comprehensive counselling is desired for donor-conceived individuals, parents and donors.

CONCLUSIONS

This study shows that legal age limits on accessing donor information can lead to several negative consequences. The age limits focus on one individual, which is not appropriate for questions about ancestry that always pertain to a relational network. Counselling should be tailored to the child's needs, and the child's family should be involved. Furthermore, the donor should receive independent counselling.

摘要

研究问题

在荷兰,与获取供体信息的法定年龄限制相关的,供体所生孩子、父母、供体以及咨询员的实际经历是什么?

设计

本研究采用现象学设计,包括 20 名供体所生孩子、15 名父母、6 名供体和 5 名咨询员。数据通过线上定性深入访谈和焦点小组收集。采用 Dahlberg 的反思生命世界方法进行数据分析。

结果

结果表明:(i)年龄限制造成与依赖、自主性和对父母的忠诚相关的挑战;(ii)供体信息对身份发展很重要,不同年龄段的身份发展情况不同;(iii)无法获取信息会导致不公平的损失,可能被视为负面的;(iv)关系稳定为处理(无法)获取供体信息提供了良好的基础;(v)程序障碍和年龄限制增加了获取供体信息的难度;(vi)供体所生孩子、父母和供体都希望得到全面的咨询。

结论

本研究表明,获取供体信息的法定年龄限制可能导致多种负面后果。这些年龄限制关注的是一个个体,对于涉及亲属关系网络的身世问题并不合适。咨询应该根据孩子的需求定制,并让孩子的家庭参与进来。此外,供体应该接受独立的咨询。

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引用本文的文献

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Response: arguments to abolish the legal age limits of access to information about the gamete donor by donor offspring.回应:关于废除供体后代获取配子供体信息法定年龄限制的争论。
J Med Ethics. 2025 Apr 24;51(5):jme-2024-110230. doi: 10.1136/jme-2024-110230.