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英格兰少数民族获取痴呆症服务的障碍及改善途径。

Barriers to access and ways to improve dementia services for a minority ethnic group in England.

机构信息

Primary Care Centre Versus Arthritis, School of Primary, Community and Social Care, Keele University, Keele, UK.

College of Nursing, Midwifery and Healthcare, The Graduate School, University of West London, London, UK.

出版信息

J Eval Clin Pract. 2020 Dec;26(6):1629-1637. doi: 10.1111/jep.13361. Epub 2020 Feb 5.

Abstract

RATIONALE, AIMS, AND OBJECTIVES: There is a general lack of awareness and understanding of dementia within ethnic minority groups in the United Kingdom. There is also a dearth of research involving ethnic minority caregivers about reducing barriers to accessing services and optimizing engagements with religiously tailored interventions. This paper reports findings from a qualitative study that examined the barriers to health care service use in the Bangladeshi community living in the United Kingdom.

METHODS

The research draws on findings from a doctoral level research study on understanding dementia among the Bangladeshi community in England. The data for the doctoral research were gathered in two ways: (a) focus group discussions and (b) semi-structured interviews. All data were audio-recorded and analysed using thematic analysis. NVivo software was used to aid transcribing, coding, and interpretation of emergent themes.

RESULTS

The data showed that there were some barriers experienced by participants due to their religious and cultural beliefs and practices with other barriers related to the complexity of the UK health care system. Gender-based caregiving also appeared to interfere with religious ideologies while religiously appropriate health care services were deemed of great importance for successfully accessing those services.

CONCLUSIONS

The findings provide an understanding of the experiences of the Bangladeshi community when seeking to access mainstream UK health care services and may help to provide useful directions for future research.

摘要

背景、目的和目标:在英国,少数民族群体对痴呆症的认识和理解普遍不足。此外,关于减少获取服务的障碍和优化与宗教定制干预措施的参与度,涉及少数民族照顾者的研究也很少。本文报告了一项定性研究的结果,该研究调查了居住在英国的孟加拉裔社区在使用医疗保健服务方面面临的障碍。

方法

该研究借鉴了在英格兰的孟加拉裔社区中了解痴呆症的博士研究结果。博士研究的数据通过两种方式收集:(a) 焦点小组讨论和(b) 半结构化访谈。所有数据均进行了录音,并使用主题分析进行了分析。NVivo 软件用于辅助转录、编码和解释出现的主题。

结果

数据显示,由于参与者的宗教和文化信仰和实践,他们遇到了一些障碍,还有一些障碍与英国医疗保健系统的复杂性有关。性别为基础的护理似乎也干扰了宗教意识形态,而宗教适当的医疗保健服务被认为对成功获取这些服务非常重要。

结论

研究结果提供了对孟加拉裔社区在寻求访问英国主流医疗保健服务时的体验的理解,这可能有助于为未来的研究提供有用的方向。

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